Hi everyone. Thank You for letting me in. I am so frustrated I don’t know where to begin.
I was diagnosed with Fibromyalgia in 2010. In 2016 I developed sudden problems with flexing my feet. First in one foot, then half a year later the other. It could flex once and then the movement stopped and the food just made weird spasms. Half a year later it hit my right leg. Then I had problems in my arms but not as bad as the feet, and finally in 2018 it hit the muscles around my mouth. I am a single mom 45 years old and I have used an electric wheelchair to get around with my kids, but have been able to walk for short distances. Since February 2018 the symptoms have disappeared and I’m almost back to normal now, but really struggle mentally with all of this.
We have a doctor in Denmark who earns bucks of Danish health care. He gives all patients, where doctors cannot find a cause for their troubles, a diagnosis that he invented called Bodily Distress (it has a Danish name). I have been examined by neurologists and they all come up with the explanation that it is mental. This makes me so sad and frustrated and I don’t know what to think.
I have elevated CK 450 and had an EMG that showed minor changes. Doctors can’t explain this and say it is not relevant.
I get money from the government while they are trying to get me back to work. I haven’t been able to work since 2013. I have no idea what my life will be like and how to support my family. I’m a single mom.