Vitamin D and Vertigo study

I have constant Vertigo with my Ataxia that improves with activity (often in summer) and worsens in winter. I have been Vitamin D deficient and hover now at low normal. This study may explain why. Despite having deficiency in the past I still have to argue with my doctor about getting periodic tests. She claims Medicare may not pay for it. Ugh!

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:thinking: I’ve had BPPV for over 20yrs, and at no time was my Vitamin D level checked (although it has been recently re a different problem, and found to be normal). Let’s hope this could be a breakthrough.

Beryl, one of my doctors told me my levels need to be higher than low-normal. I’m going to watch this vitamin closer (I take 2,500 I. U. per day) and see if I notice improvement when taking it consistently.

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I take 4000 units a day for years and although I haven’t seen any improvement in my Ataxia my bones seem to have gotten stronger. Definitely a plus since I’ve been falling more than once because of my recent bout with Sciatica and my balance and equilibrium problems.

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:thinking: Taking a higher dose than recommended always makes me pause for thought…but obviously some people are recommended a higher dose.

The main consequence of vitamin D toxicity is a buildup of calcium in your blood (hypercalcemia), which can cause nausea and vomiting, weakness, and frequent urination. Vitamin D toxicity might progress to bone pain and kidney problems, such as the formation of calcium stones.

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I have this trouble too from MS. No meds are available for my trouble in my country but even though I take a lot of vitamin D, what helps my ‘dizziness’ a bit is taking vitamin B12 supplements. If you have no relief, try it.
I never qualify for the studies that are posted because I do not live in the right countries…I’m in Canada…

Jen
I am also taking an MS drug for vertigo that works mildly for me—4aminopyradine. A small improvement matters a lot in my movement. Not many doctors have even heard of this. There is a commercial brand—very expensive—but because I don’t have MS they won’t prescribe it so my ataxia specialist prescribes it as a compounded drug. You might google it.

Mary Englund

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Thank you, Maryseas, but I am being told that that drug is not available in Canada, and that’s why all I can do is take some B12. Sad. (I am glad to hear back from someone!)

Jen that’s too bad. My pharmacy did have to special order it.

Mary Englund

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