I finally got my day in court (so to speak) (last time I was seen by a younger neuro because my guy had an emergency) and here is what I learned:
He said I have worsened slightly (seem slower) and "wobblier" to him--although my shrink said I seem the same. My bloodwork as of quite recently indicated (once again) a "positive" finding for a certain antibody known as Nuclear AB Adult, whatever that is. I also developed pain in my hips, (can hardly rise fast) and right big toe, which, comes whenever I have been stationary for a while. (The toe also has a bunion.) The hip pain vanishes after a few minutes of movement. My neuro thinks this is odd, and recommends that I see a rhematologist. My mammogram results were normal and now he thinks I should have a CT of my abdomen etc to rule out cancerous tumors which sometimes (rarely) make their appearance known via ataxia. I already had that horrible EUS test to rule anything pancreatic. I have nothing but an oldcycst near my pancreas.
He says I should use a cane--something I have been resisting because I feel as though it marks me. I have yet to see or meet anyone with CA .
I find sharps turns are very hard for me, as are uneven floors, getting in and out of cars, darkness, alcohol and bannerless staircases. a steep hill can cause me to tip forward or fall back. I am breathless and sweating after walking home from the movies (5 blocks about including one hill.)
Yet, I see that "mind-control" plays a signiicant role in ataxia--at least for me. I find that I can often talk myself out of a fall, for example. Or reach my theatre/movie seat without toppling on seated customers, and getting there upright by will.