Current Status and Question
Cut to the chase and fast-forward to 2013. I passed through all the known progressive indicators and reached a plateau 6 weeks ago. Four days ago, I've assumed I've reached the early stage of the "final stage" of muscle atrophy.
The progression now is pause for evaluation of the future. I've read that expected life-expectancy at my age could be 10 years--10 years from the onset (7 down), aka, 7 down and 3 to go. Or does the clock start its countdown now or after the continued weakness and atrophy. Please be candid in any rely--I do not fear death..I do not believe in the pearly gates and reincarnation.
Any comments, advice or insight? For those who know wear I'm headed, I already created a "Final Exit" and am a an ardent believer in the "Right to Die" with dignity.
My name is Sid; 67-yrs-old. My first of 5 minor strokes in 2006 resulted in destroyed leg nerves and total imbalance--many falls. The first "N" and subsequent 2 didn't have a clue and siad "this good as it gets". The 4th of 7 Neurologists finally put me through the wringer, including the dreaded spinal tap. His X-Ray clearly showed a "dropped Cerebellum". He went as far to say that I had holes in my head and a cerebellum "disorder".
"N" #5 was the "Super-Doc" in Parkinson's Disease at NewYork-Presbyterian Hospital. Number 5 guaranteed a "bulls-eye" diagnosis by one of the top ALS specialists in the world--the elitist made it clear that he didn't see patients unless they were already diagnosed with ALS. Despite my low esteem toward elitist docs, he replayed the tune, "You have a Cerebellum Disorder, most likely caused by my minor stroke in 2006; no cure; no drug inhibitor to guaranteed progression: Sentence: Death from final stage of such disorders (energy drain, weakness and muscle atrophy). He had no treatment or therapeutic aid--his departing words were simply to continue eating nutritiously, weight-training, and to never attempt to drive again.
I will start over again next week with "N" #7.
Thank you all who have read this post,