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Ataxia Support

Troriluzole, Trigriluzole

I want to hear recent news about the medication.
I was told Dr. Parman at UCLA univ hospital is very positive of the drug!
hoping to listen to the latest news.

I am on the 2nd. trial with Trigriluzole at Johns Hopkins. I am taking the original dose at 140mg. a day. There is a separate trial with 2 capsule (280mg) a day. Trigriluzole is a “Glutamate modulator” and takes up excess glutamate which is toxic to the nerves. Although, I have not seen a significant improvement, my neurologist thinks that my SARA score has not deteriorated during the study. Eventually, Trigriluzole may be approved by FDA for slowing down down the progression of the disease. But that’s a start. I hope more research will follow.

Thanks! we need a hope that there is no more degeneration.
can’t wait till it get approved by FDA!

Thanks! we need a hope that there is no more degeneration.
can’t wait till it gets approved by FDA!