This is a long post, but hopefully talking about going gluten-free will help us all reach some conclusions.
If you have confirmed Celiac Disease you should definitely go gluten-free. There is absolutely no doubt about that.
My story is for those who are not sure of this issue...
In my case, I was initially diagnosed with Episodic or Sporadic Ataxia.
A gluten antibody test (IgG) showed I had a high count and I went gluten-free for a year and a half.
My cerebellum still showed a progression of atrophy and it meant that gluten might not be affecting it.
An expert neurologist said that most likely I have an an SCA with an unknown number.
I could not find any conclusive evidence for being gluten-intolerant and I started eating gluten again..
Earlier, I also had a stomach endoscopy and biopsy and the standard DQ2, DQ8 tests done and they were negative.
My Gastro-Intestinal doc. and general doc. said I didn't have gluten problems.
Reading more about this, I saw that there was some paranoia about gluten and people said that these tests are not the end-all.
Ok, so I also did a test with a private lab and they said I was gluten sensitive. This was 8 months after being GF and I am a bit skeptical of their method.
Most of these tests are based on anti-bodies for gluten being found in your body and I wonder if it could be normal to have some anti-bodies for it?
I was confused and I stopped gluten anyway, just to try for myself.
When I stopped eating gluten, I felt good at first. I think any human will, since gluten stresses our systems anyway and stopping it would benefit us.
So, go easy on that cake :)
I know there has been embracing of gluten-ataxia (especially in the UK?) but I have not yet seen any evidence of it.
The only theory I have heard is based off the autopsy of 1 individual and I'm not so sure.
There might be some new tests nowadays for gluten.
In my case, I did not see a corelation between gluten and my cerebellum.
I know many people here and with other issues go on a diet with no flour and sugar, but I have not seen any proof of why it works.
Having said that, it might work for you and that's great because you now have something to go by which alleviates your problems. This is a plus.
Anyway, my concluding thoughts...if you're wondering about GF.
Do the Celiac tests first.
Avoid an endoscopy.
Be weary of labs that offer specialized tests.
The best test is to go gluten-free for 3 months or 6 if you can, and see how you feel. No cheating by eating gluten once in a while because then the protein stays in your system for a while and could do the damage.
Keep it longer and see if your cerebellar atrophy (if any) progresses via an MRI (this is the ultimate evidence)