I went to see a speech therapist yesterdaay.I saw the same team about three years ago when I was just beginning to have some problems.
I could not understand why all our support group slurred but my speech was more staccato.I felt the odd one out because I did not slur but found speech increasingly difficult. As once explained to me it was my breathing which was in coordinated not the muscles in my mouth.I have been given some breathing tips to practice.
Both assessments have said the same so the good news is that my oral muscles are not deteriorating as I thought and I can understand and do something.
This set me thinking about different responses to the diagnosis of Ataxia.
I am naturally an Eeyore which is genetic but I want to be more positive.Many of us have a real struggle with negative thoughts so i think it is personality and Ataxia which makes the difference.#
How do we respond to such negative news ?
I for one have gone through the phase of thinking about what I used to do. As Thomas Clouse seems to explain we used to take balance etc for granted.But now we have to work much harder and I don't like that aspect.Ataxia of some shape or form has robbed us of that ability but it is possible to relearn things.
Before you think he doesn't know what he is talking about he is an Ataxia person himself and a doctor who explains medical knowledge simply.
We can change some things. There is hope.I did not want to be told to run along by some Neurologist as there is no conventional treatment for you.I want to fight and to accept.There are many wise comments on this site by some very in telligent and wise people.Wisdom is knowing where and when to make the right choices.I want to be an encourager but I do understand discouragement.
I have been there.