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Ataxia Support Network

tDCS surprise


#21

I see you were also on clinical trial 4157. Any luck in using the pill? After 1 year, it proved to be a dud for me.


#22

There was improvement with BHV-4157. They say there was no deterioration either while on it. Go figure.


#23

I read that Biohaven will be introducing a clinical trial for TRORILUZOLE, BHV 4157-206. This was mentioned on a recent newsletter from www.ataxia.org :slightly_smiling_face: xB


#24

This is supposed to be slowing the progression of the disease. It’s an expansion study of the previous BHV 4157. I initially heard from Johns Hopkins, but nothing recently.


#25

I am not being able to go to Las Vegas for the annual NAF meeting next year. If anyone goes, could you learn more about tDCS ( Transcutaneous Direct Current Stimulation) ? This seems to be interim method to improve cerebellar function till gene editing or stem cell infusion are successful.


#26

I hope to try it soon for my daughter also… What do you think when will it be available on the market?


#27

Although tDCS had shown some promising results on the cerebellum, I am yet to see any FDA approved or cleared device in that regard.