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Ataxia Support Network

Tanganil 500mg

#1

Hello everybody,

I would like to know if anybody has any additional information on where to purchase this item? I only found this French company called Pierre Fabre: pierre-fabre.com/en/healthcare-medical-products-contact that sells the stuff but would rather purchase in US.

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#2

Hi Henry, I think I need to find out if I can get some Tanganil sent to me here in the UK where I live. I was prescribed some by my GP but in France (I’m half French). If I can’t find a website I might have to ask my brother to sent me some. Here’s another website who seem to ship internationally but from France again https://www.soin-et-nature.com/en/dizziness/9276-tanganil-ge-hypotension-dizziness.htmlx
Sorry not very helpful
Melanie

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#3

santa cruz biotechnology. sold as Acetyl-DL-leucine

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#4

:slightly_smiling_face: I searched online ‘is tanganil on prescription in the UK’ and scrolled down to a link from srft.nhs.uk

Tanganil acetyl-DL-leucine 500mg tablets

Usage - To treat patients with ataxia of different aetiologies, including Neiman Pick type C.

Approved March 2016 as proposed indication.

Funding to be sorted ahead of treatment.

FUNDING seems to be key, not all Area Health Authorities may consider funding this medication. Unfortunately we hear of this happening in all sorts of cases, medications on the NHS being refused because of lack of funds.

Ask your Neurologist for advice :thinking: xB

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#5

A cheap trial for me.
I’ve purchased a bottle to try. My research indicates there are no known adverse effects from taking this supplement, other than it’s not recommended if you are pregnant. A standard warning for most drugs, I’m pretty sure I’m not pregnant!
I will continue to post updates and results of my trial.
I plan to consult my physician on this (as always)

https://ca.iherb.com/pr/Source-Naturals-L-Leucine-500-mg-240-Capsules/19155?gclid=CjwKCAiAnsnjBRB6EiwATkM1XjvtR29SlmoaItmN17kWWth_imDDFDl_YabO06wx8cIaS4NphHBo9hoC8nkQAvD_BwE&gclsrc=aw.ds

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#6

Henry, I found this link. I think this is an American company,

https://ca.iherb.com/pr/Source-Naturals-L-Leucine-500-mg-240-Capsules/19155?gclid=CjwKCAiAnsnjBRB6EiwATkM1XjvtR29SlmoaItmN17kWWth_imDDFDl_YabO06wx8cIaS4NphHBo9hoC8nkQAvD_BwE&gclsrc=aw.ds

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#7

After a week of trialing these pills, I experience little to no benefit from this product as yet.
I will keep taking them as there doesn’t appear to be any side effects.
Maybe when I wake (if I wake)! tomorrow effects will be noticed.
I have MSA (multiple system atrophy)
Intranet searches revile that it has no benefit for those afflicted with MSA. However, what have I to lose?
Still hoping for a cure not just for MSA but all ataxias.

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#8

Hi hutchy-10, I ended up buying a bunch of the stuff (Tanganil) from: https://www.moncoinsante.co.uk/tanganil-ge-acetylleucine-500mg-traitement-des-vertiges-pour-l-adulte-30-comprimes.html. Like you, I felt it as a cheap trial and with no side effects. I’ve been on it for 2 1/2 weeks with no improvements. That goodness it is safe to take!

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#9

Enrico, please keep us informed, especially if you realize any results.

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#10

Tanganil did not work for me after almost 6 weeks but it was safe to take with no side effects. I have SCA2 and may work for others.

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