yOU ARE THE FIRST ataxia person, (no idea how you found it out, is yours hereditary?)What I wanna say hats off! for showing everybody, who has it, it is POSSIBLE to live with it, till your 70s…My paternal grandma (inherited hers from her pa), started developing symptoms after my father was born, at 21. 51 years (in her case) and had a few falls and incontinence problems…She never exercised. Lost all her muscle power, so where she fell, she stayed…Not the most glamorous 3 years of her life, but UNDIAGNOSED and unhelped, could do for her much more…No idea if she shook…became completely DEPENDENT on my pa…The way she walked was fine, only when she bent, she often lost balance. And knowing what’s going on, she got so spooked, she NEVER investigated ANY FURTHER. It was partially her uneducated background, but also FEAR…The worst she could have done, STARTED DRINKING ALCOHOL.wasn’t well and made herself EVEN worse, developed full blown depression, alcoholism…My late father (cancer) was the same, lucky he was not thrown up from the police force, turned up a few times NOT COMPLETELY SOBER on duty. Had treatment for alcoholism and the most terrifying thing for my ma was being in possession of gun( not to her knowledge) BUT NO AMMUNITION, as you may have guessed, I do NOT originate from Britain (ex communist country of central Europe), where carrying guns was normal…for a bog standard policeman.
EXERCISE, EXERCISE AND EXERCISE, I cannot repeat enough. Keeping the healthy muscle tone is the right trick…and if other probs, like swallowing difficulties, exercise the neck muscles, if speech going, search for a speech therapy…Always work on it! as far as it allows you.