I wondered whether it would be useful for people with SCA6 to have their own thread to swop info, swop tips on how to cope with the condition, etc.
My Dad had SCA6 so I wasn’t completely surprised when I got symptoms and then a diagnosis. My Dad was in a wheelchair at 70 and I’ve been trying to do as much exercise as possible to ward this off (I’m 60). Because I was diagnosed early on, I still play tennis and go for short runs.
The best advice I got from a consultant was to blink or do little jumps whenever I feel that dizziness coming on. It seems to work for me.
SCA6 also affects me mentally (I think). I am concerned about my ability to remember words so I do the (easy) crossword every day and learn French.
Any tips or advice or interesting thoughts from any other SCA6-ers?