I’ve got to confess, many you have helped me through the worst of times. This has been my only place to feel understood and I haven’t even posted!
Lurking since 2015, because I was going to get better of course! I’ll learn, but this won’t be me.
I don’t remember that me as much now.
My world changed more abruptly then I read in many posts. No car accident or bad fall.
I need your help and advice. When I first heard I was being taken to Neurology from the ER I thoug Ok here we go, I’m going to get sorted out! Years later I understand Doctors better and more importantly understand that everyone has something to offer and I’m now interested in experience.
So because I’m already overwhelmed with Nystgmus and heart racing from FINALLY posting I’m going to ask if anyone is interested to play HOUSE with me. Dr House of course!
Let’s do this backwards. You ask a question, anything symptoms, age, family etc and I will answer.
Perhaps then I will get a leg up on this so called diagnosis I believe I deserve to have. I know it’s not all black and white. It I believe I’ve been neglected by doctors who don’t understand my severe discomfort every moment of every day and the effect it has on everyone.
Please ask a question it may lead someone else to another point that could open my eyes.
39 year old female
MRI shows significant atrophy to the Cerebellum
Terrible Vertigo then Nystagmus at night, positional Vertigo in bed specifically
Have slept in one position since October 2014 - weeks worth of trying to “push through” the dizziness
Walk with Cane so I don’t appear drunk as a mother of 3, my favorite place turned into my worst - the grocery store
Currently on no medication - I want it all but don’t feel confident in any doctors and am waiting on Mayo but it could be a long time as we have moved twice and my dr trail of info wasn’t ideal. Frustrating to say the least.
See I’m rambling. I should of written sooner. I apologize, but do feel many of you understand. I have a lot of knowledge so I’m ready to answer I just have such trouble explaining.
One last thing, haven’t come across anyone the same only similarities. I feel it’s important to really get to the bottom of the cause and as you know many just want to treat my symptoms and talk about how depressing this must be.
Play HOUSE with me?!