ALL Ataxians living outside of the U.S. CAN PARTICIPATE:
Email me : email@example.com for specific details on how you can participate in this study.
All Ataxia’s Are Needed. The Ataxia field desperately needs an Ataxia-specific PROM (Patient Reported Outcome Measure) to monitor issues that are meaningful to patients. Dr. Jeremy Schmahmann’s Lab at Massachusetts General Hospital has developed a PROM-Ataxia and now needs to determine if it is reliable when completed a few times over a month. They are seeking patients with Cerebellar Ataxia who can complete this scale at home, on 3 separate occasions, over a period of 1 month. This will allow them to assess the test-retest reliability of the PROM-Ataxia. For this project, Dr. Schmahmann’s lab needs access to 140 people with Cerebellar Ataxia.