Today was probably the worst day since I’ve been diagnosed. Pretty much all day I had pain in my knees both while sitting and standing. Just very painful. Tonight i will try sleeping with some heat between my legs hopefully that will give me some relief. But is this a common sign for SCA7 or just SCA in general?
Hi Pain, in various forms, isn’t unusual for most ataxians,
whatever the type. But, not all pain should be put down to ataxia symptoms. It’s always wise to consult a doctor🙂
I have pain in my right arm, it could be due to one of three things. Arthritis ( diagnosed), lack of prescribed exercise after radiotherapy or, muscle spasm because of ataxia🤔
Inactivity causes stiffness ( I know only too well what it feels like to sit in one position too long) Stiffness can be very painful. I’m overweight, probably putting extra stress on my joints and causing pain:roll_eyes:
So, there are recommended medications specifically for ataxia symptoms see Fact Sheet on www.ataxia.org Print it off and show it to your doctor, not all doctors are up to speed xB
Thank you for replying. I’m going to try and be more active and do more exercises. I do spend a lot of time in one position for a while, maybe thats whats causing this? Im not sure but i will also try and get to the doctor one of these days.
I’ve also had pain in my knee (doesn’t help I’ve had 4 Arthroscopic treatments done on 1 knee) and usually find watching my weight helps to move around a bit.