Hi everyone. My son was diagnosed with AT two years ago. He is 13 now. He is still able to walk but is becoming more unstable. We take him for physical and occupational therapy. I have never come across anyone having AT, so I am hoping to learn more about it.
Hi Kelly, welcome🙂 Log onto www.ataxia.org and type Fact
Sheets in the SEARCH BOX. Next page, click on Fact Sheets and scroll down, 4th from bottom is the Fact Sheet for Ataxia-Telangiectasia.
Also, you can log onto www.atsociety.org.uk for information.
Thank you Beryl. Will definitely look into it:)
My wife has sca 7. My only advice would be to find a good neurologist who specializes in ataxia or minimally, is treating Sca currently. Avoid general neurology or someone whose practice focuses in ms. Don’t wait. Time matters. And stay positive. A positive attitude may not cure your son but a negative attitude will surely make things more difficult. Positive people find open doors, negative people find open doors too, but they are often unable to turn the knob…
Thankyou. Agree on being positive. My son is very positive, despite his condition, and I’ve learnt a lot from him.