I am Aliona Stoian is 25 years old (born on 1989/03/07) from the Republic of Moldova, Chisinau.
My mother died in 2008 and i has't never met my father. I have only my grandmother as a relative.
My benefists from a disability pension of up to 1100 lei (or 78 $; or 57€), i live alone in a room inherited from my mother.
I am suffering from Spinocerebellar Ataxia Type 2 (SCA2)
The disease manifests through the disorder of the body’s balance, which creates me many difficulties, because i cannot walk normally on my own . My walking is instable and i am often confused with an alcoholic or under drugs. Because of my instability it is dangerous for me to do any activities in my own house.
Another problem is the paralysis of the tongue, which produces me great difficulties in speaking.
I am using many vital medicines that are very costly and can be bought only from Russia. Without these medicines i am under the risk of ending up in a wheelchair in a very short time. I cannot take the public transportation,so when I need to go somewhere only to taxi.
I feel shame to go out of my house because people around me make fun, addressing to me with sharp remarks “So young and already drunk” in the middle of the day. They do not realize with how much difficulty she keeps her balance and goes out of the house. She went to many clinics and hospitals from Chisinau but our doctors don’t even know how to treat this disease. That's why i think i need to go abroad to a good specialist.
My words: “I thank God for the people who love me, for the people I have met, for all the big-hearted people. I owe them the smile on my face and the joy to live because they taught me to love life and accept it as it is and not to forget to dream, to believe…that I will make it, that it is possible…”(sorry for grammar mistakes)