My story began 8 years ago (age 40) when I started planting my feet awkwardly when walking on a sidewalk in NYC. This progressed to speech slurring and voice roughness in a year later (2011), and gradually increasing loss of precision in all muscle movements, head to toe. Speaking, maintaining posture, writing and even reading have become extremely challenging. I was an English major back in college, so this is quite a change! For me, my muscles has lost tone and atrophied at the same rate as my control issues have progressed, so my legs and arms becoming sticks.
The hardest part for me thus far is failing to get a diagnosis after more than 50 doctor’s appts over the years. Everyone agrees something is going on, but no one can say exactly what. It appears not be a known mutation. My last brain MRI (18 months ago) was clean. (BTW, is a brain MRI sufficient [it didn’t mention cerebellum in the report], or a cervical spine MRI needed to detect slight atrophy?)
Thanks for reading this. I’ve already found a lot of useful tips here.