It’s possible this could be linked to Episodic Ataxia… Before I was properly diagnosed, I had one seizure in my sleep (my husband thought I was having a stroke) and later a week of horrendous headaches but nothing other than mild Atrophy showed up on an MRI. At the time I was also experiencing deja vu episodes, these lasted from seconds, to a couple of minutes. It invariably occurred when I got up in the mornining, after I started bending and moving around. The sensation is difficult to put into words, I’ve since been able to relate to descriptions given by other people. Initially there would be a fleeting deja vu ‘picture’ flash into my mind. Then I’d feel nauseous, dizzy and very weak, no headache. All of this could take place in seconds and I’d brush it off and get on with the day. Occasionally, the sensation would make me feel the need to lie down till it settled, sometimes it took a few minutes but I never lost consciousness. I didn’t experience other physical sensations associated with Hemiplegic Migraine. Although, since childhood, off and on I’ve experienced pins and needles in my tongue, this can be associated with the condition.
A friend regularly suffered very disabling migraine headaches (not ataxia) and once had a deja vu episode, I was with her as she waited for an ambulance. At the time, I cautioned her husband to be careful about any description he gave to triage nurses at the hospital. This was because of my own experience. After an examination it was
confirmed the ‘episode’ wasn’t Epilepsy it was related to Migraine Aura.
I’m prescribed Diamox ( Acetazolamide in the UK). The recommended dose is actually more than I can tolerate because of intense pins and needles, so there has been a period of adjustment. But, everyone reacts differently to medication. Luckily I’ve been able to find a happy balance, for me the medication helps with vertigo when I lie down, and deja vu is controlled.
I looked online, there is information out there relating to Hemiplegic Migraine in children. It’s worth having a look just to help you understand the condition but remember, not all children will experience exactly the same symptoms.
It’s likely that I’ve rambled on too much😏 I hope you find the link helpful🙂
https://americanmigrainefoundation.org look for the link to children.