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Ataxia Support Network

Episode ataxia 2


#1

I have epileptic ataxia 2 and I have been reading about others and find it hlpful to know that some of my problems I have been having is due to my ataxia and others can understand me I’m not alone anymore


#2

My name start am dealing with ataxia 2 as well. Living with ataxia really helpful. I know longer feel alone as well. Reading new helpful ideas of others. How to deal with ataxia . Am so grateful I have a community I can reach out to. We all can share and help one another. Awesome :clap:t5:


#3

Although my diagnosis remains as Idiopathic, I have begun to wonder if Episodic might be more ‘on the mark’ :thinking:

I began to realise there was a pattern of sorts. To me, basic ataxia symptoms would be there 24/7, but there would always be a period of time when I felt decidedly worse, and was virtually confined to a sofa :woman_facepalming: Then for whatever reason, the light would come on again, and I was back to being the ‘new me’ for an undefined period of time :thinking:

My Neurologist acted on this, and requested specific testing. It seems I test negative for current types of Episodic Ataxia, and there are several. But, I remain convinced that I have a link, however tenuous :slightly_smiling_face: xB