Quantcast

Ataxia Support Network

Difficult day


#1

Today was rather tough. I don’t know why is the weather is nice out. I’m having great difficulty climbing steps. We’re considering buying A stair lift. Yes they’re expensive, but I need to leave the house sometimes for doctor appointment. It would also be nice to have a meal out with my hubby and just get some fresh air. I couldn’t go down the stairs today. The room was moving way too much so I did not feel safe. I’m very discouraged today. Thanks for listening.


#2

Hi Geri, hang in there. I’m glad you could share this with us. The difficult days are a little better when you know you are not alone. A stair lift sounds like a great idea, I wonder if anyone here can advise on a good brand?


#3

I have a stair lift and I think it is great. Otherwise, I would not be able to get to half my house. We ended up moving–I am not the only reason–and I would not live in a house that I couldn’t get to all of. In the meantime, can you get up or down by scooting on your butt? It is not very dignified, but it is what I need to do if we visit my son and his family. I have given up on being dignified now.

The chair lift is also handy for delivering stuff up or down when warned/needed. I remember when my children sent a beer to my husband while he was wrapping Christmas gifts, a job he hates.


#4

Thanks, everyone. I appreciate the support. I may get more answers at my GoodShepherd evaluation on 2/15. This site offers useful information. It’s also good to know I’m not alone… God bless.


#5

Hi I have a difficult day coping with my deppressing I’ve got vital infection I keep getting due to my ataxia and I can’t walk as far as i used to I’m only 48 can’t exercise as much as I would like to it’s really hard to cope sometimes


#6

Hi Tracy, welcome :blush: It can be so much harder to cope when you’re feeling ‘under the weather’ as well :smirk: We’re told Medications aren’t prescribed for viruses, so it’s often a case of having to weather the storm :roll_eyes: But, if you think a chest infection is setting in, don’t hesitate to make an appointment with your doctor :slightly_smiling_face: Hopefully you’ll get out for fresh air and gentle exercise soon :slightly_smiling_face: xB


#7

I’ve got steroids at min and nearly finished them I’m still coughing a lot I’m going to see how things go and then make another appointment with my doctors thanks for your advice


#8

Bad days seem to come and go regardless of the weather don’t they? But bad, damp weather seems to magnify problems. I’m not certain if there is a direct correlation there or not? But I have my suspicions.:thinking:
I have an Acorn stair lift. I Had it installed a couple of years ago, I didn’t really need it at the time, however, I found it handy later. Now I always use it. Expensive, It cost me a fortune! but a valuable asset. I don’t take risks with the stairs (they are mean to me):persevere:!. I have a side split home design, and my bedroom, recreation room, and laundry are all on the lower level. So it’s necessary.:slightly_smiling_face:


#9

Winter gets to me too, Hutchy. Like now. Fellow Ontarian, take heart … if winter comes, can blackflies be far behind? (Sorry, my friend.)

I have to admit, your post made me smile.

I don’t take risks with the stairs (they are mean to me)

Stairs are mean to me too. What a great way of looking at it. Thanks for the giggle.

Seenie (over by Petawawa)


#10

Hutchy I must admit I have read your post and I have problems all the time but cold dam weather seems to be worse and stairs are really mean to me to so I think you have a good way of looking at things