My name is Sanitheya (34 yrs) and my father just recently passed away 8/25/17 with the disease called cerebellar ataxia. He was 74 years old. He began seeing symptoms in his 40’s. He would bump into walls and stumble. He decided to get a cane and then moved on to being wheelchair bound. Eventually, he became bedridden. I personally think my dad could have lived longer but I felt he gave up a lot of times. The disease is a hereditary disease that was passed from his father. Including my dad, there are a total of 4 siblings. The disease skipped his oldest brother and caught the other 2 boys and 1 sister.
I’ve joined the Support group because I am trying to learn as much as I can about this disease that is haunting our family. I initially did a book report back in the mid 90’s when it was only called Ataxia or Frederica Ataxia. Since then, I’ve read there are several strains of the disease and more information than I can comprehend on the National Ataxia website.
If there are any studies, books, research, etc that has useful information, please let me know. While I know there is no cure, I want to be knowledgeable as much as
I can to help my aunt/uncle and anyone else in the family it affects. If you have any questions for me, please don’t hesitate to ask.
Thank you all!