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Ataxia Support

Current info (2019) re opportunities to join Clinical Trials

I’ve been registered with multiple clinical trials for 5+ years and have not yet been contacted from any of the sites. How do I get contacted?
Am I doing something wrong? I have SCA 28 and am in good health and shape. I’m 55 and diagnosed at 21.

:thinking: It’s impossible for me to give you an answer to this. You could look on clinicaltrials.gov and check the progress of the trials you enrolled in, some might even have stalled at an early stage. Or, get in touch with the trial organiser :thinking:

Also register here for clinical trials Ataxia registry