Chas, I too am suffering from constipation issues. Unfortunately there doesn’t seem to be any good solutions to this problem. (maybe problems would be worse without proper diet, exercise, and water)? It is my understanding that: once the muscles responsible for moving waste through the bowel system quit working, none of the medications, powders, or supplements etc. seem to work. Some work by stimulating the muscles, and others work by pulling water into the stool.
My neurologist has referred me to a gastro specialist as well. So I will hear what he/she has to say, but I don’t expect any miracles.
Dulcolax if nothing else gave me cramps as well. It was unpredictable, in that you never really knew if and when it was going to work. Hence many accidents!
I have a herniated small umbilical appearently from pushing so hard.
Now I use Restoralax, and lots of H20. But it seems to be less and less effective.
Bottom line here may be that, there is no solution. We may have to struggle/live with constipation. I’ve preached this before, but a sedentary lifestyle and lack of water may be to blame. And I know these solutions to the constipation problems aren’t easy to achieve for ataxians.
My experience may be of no use, but I can assure you, you are not alone in this battle.
Please do keep us informed of your experience with the gastro doc.