I’m here in the US so I’m not sure how testing goes in the UK. When I began to show symptoms back in late 2016 I underwent a variety of tests; inner ear, MRI cancer screening, nerve testing in my legs, etc. The doctors labeled it ataxia. But that didn’t explain it all. I finally got hooked up with a specialist in May 2018 who looked at my MRI and within 10 minutes diagnosed my condition; Multiple Systems Atrophy; MSA for short. It is in the Parkinson’s family. I have that with cerebellar ataxia, MSA-C. I am 65 now. The diagnosis at that time was it’s incurable and life expectancy goes like this; 2 years with a cane, 2 years with a walker, 2 years in a wheelchair, then you die. A real rosy outcome. I fight it everyday.
I use a cane as a prop mostly because I don’t want to appear that I’ve been into the stout all day. It really doesn’t help that much to be honest. I stumble quite a bit and shuffle, and fall occasionally. I have trouble speaking and fine motor skills are affected as well as some cognitive abilities. It’s a bitch sometimes since I was a very active person and now can barely walk but in the end I’ve had a good life, and a great supportive wife. And that keeps me going.
All that to say shat ever you have to go through to get the tests do it. 95% of dealing with it is knowing what you have Good Luck and keep your chin up.