Hello i have Ataxia type 7 .can anyone tell me anything about it.
I also have sca7. Well to start off my vision got to a point where i was legally blind. As with sca7 the vision tends to go first. Then 2 years later i started to notice tremors when i did activity or just walked for a while. Then it got worse to the point where i could barely walk a quarter mile without feeling the effects. I sent a lot of mris to a neurologist that told me i have sca7. This was last year at December . So far to help i am in rehab therapy with a neuro therapost. And currently wearing a blance belt to help train me to move. I havent found any help for the eyes yet though. But i just wear sunglasses alot to protect them as they are sensitive. Dolo23.com…is a little blog i started telling of my experiences and what not. You can read about me and sca7. I hope this helped.
I read your blog was exactly how I feel daily.Thanks for sharing.It helped me a lot.If people would listen with there heart not their head that is helpful.If it wasn’t for the Lord helping me daily could not make it.I’m in a chair walk some with walker,can’t drive anymore.Have to have some one take me.But all in all this is not my final home.So that keeps me going.Thanks Earlene
Hi If you didn’t already know, www.ataxia.org has info about SCA7, lots of useful fact sheets and helpful links🙂xB
Thanks beryl I’m new to the site that is very helpful.Thanks Earlene
I thought about one of the balance belts has it helped any.Earlene
I just started a week ago with the belt. But with the belt and my trainer in a few weeks or months i should be able to walk a little less with my cane and more with my own two feet. So far i havent really noticed THAT much but given time i am hopeful. Do i suggest that you invest in it? You should really ask me that in a couple weeks
Let me know in a couple weeks if you can how the belt is working.I had thought about trying one.Would be interested to see how it works.Earlene
Will do i will let you know how things turn out.