For the past 6/7 years I have thought I had CA which was officially diagnosed.However I am baffled by some of the symptoms.There is no-one in my support group who has the same.6 or so years ago everything was ok.I go to the Oxford Clinic and the Nero I see does't seem surprised at the symptoms but at the rapidity of degeneration.MSA has been suggested but I have been down that route several times-doesn't fit.I am now 55 and a hereditary link cannot be found.Symptoms at first were loss of balance and fluency of speech.Now this year the balance has gone so I have to use a wheelchair.
Speech is very difficult and the tremor has got worse so I have lost my independence with eating and looking after myself.Also my focus is dodgy.I am getting muscle weakness and finding it difficult to stand.Also have just started with dry skin on eyebrows and upper half of face
I am rigid with fear of falling over but still haave some movement and have bladder difficulties.
My question is how mmuch is Ataxia,how much age and how much hormones?
Do not have nystagmus,speech isstaccato rather slurred,no fatitgue or any cogitive decline,no pain and no swallowing difficulties..The tremo0r is action not Parkinson and although there is some crossover the movement(or lack of) is quite different.I'm confused.My MRI taken 5 years ago showed cerebellar atrophy.Should II ask for another MRI or will it be seen as a watste of money by the NHS.
Does ajnyone else have a combijnation of these symptoms???