Hi Brett You can click on the magnifying glass symbol near your profile picture, type in SCA5, and find links to previous discussions.
I have a less than 100% link with SYNE1, which is linked with Recessive Episodic Ataxia. Despite it not being 100%, I find symptoms challenging, progressive and degenerating. You may find that most people, regardless of the type diagnosed, advise keeping mobile as often as possible, exercise often within capability, and try to eat as healthily as possible.
If you feel unsafe due to worsening balance, and your gait is suffering, you might find a rollator beneficial. Personally, I’m much better off holding onto my rollator, it makes me feel more grounded and safe. And, I don’t even need to grip the handles tightly to actually feel more in control, the effect must be part psychological
A Speech & Language Therapist could be helpful if slurring, or choking are an issue.
If Nystagmus is bothering you, at the moment there is no cure for this. I have read of experimental treatment involving inserting small magnets into the eyes This was done at Moorfields Eye Hospital in London (search ‘dancing eyes’). And, there is link to medications that have been prescribed for Nystagmus, on ataxia.org