Meeting of Scott Orn and Me after 3yrs of teaming up to support Ben's Friends
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March 26, 2013 at 6am to February 4, 2014 at 7pm – London 2 London via THE WORLD
January 7, 2014 from 2pm to 5pm – ABBERTON MANOR, CO5V7NL UK
February 28, 2014 all day – Worldwide
March 21, 2014 at 8am to March 23, 2014 at 12pm – Bally`s, Las Vegas
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Acute Disseminated Encephalomyelitis (ADEM)
Arteriovenous Malformation (AVM)
Atrial Septal Defect
Charcot Marie Tooth (CMT)
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Guillain-Barre Syndrome (GBS)
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Traumatic Brain Injury (TBI)
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
Help spread the word about our newest communities by sharing on your Facebook wall: Acute Disseminated Encephalomyelitis, ADD, Amyloidosis, Disabilities, Ehlers-Danlos Syndrome, Fabry, Guillain-Barre Syndrome, Lyme Disease, Myositis, Narcolepsy, Nephrotic Syndrome, Sjogren's Syndrome, Traumatic Brain Injury, Von Willebrand's Disease.
Posted by Bob in st louis on December 3, 2013 at 10:51am
Couldn't have said it better rayjan, thank you.
This song comes to mind by James Taylor:
"You've Got A Friend"
When you're down and…
Posted by rayjan on December 3, 2013 at 8:42am
SINCE IVEB EEN ON THIS SITE MY THOUGHS ABOUT ALOT OF THINGS HAVE CHANGED. I WAKE UP EVERY MORNKING AND GO TO MY COMPUTER AND READ THE BLOGS AND RESPOSE AND I FEEL NOT ALONE IN THIS. BEV YOU SHOULD DO THIS TO. MANYA TIME I ALSO FEEL WORTHLESS…
Posted by Beverley on December 2, 2013 at 7:19pm
Posted by twirlie girl on December 2, 2013 at 2:44pm
I am newly diagnosed Sensory Ataxia and Neuropathy of both feet.
I have my next Neurologist appointment Jan 6th, 2014
It was a ten year battle, for my doctors to finally understand how sick I was feeling. My…
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