Living With Ataxia - Online Support Group

This video shows the TSA's current #Fight4Treatment campaign with father, Nick Dale, to make sure all people with TS has fair access to medicines, specialist...


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Comment by Alan Thomas on July 14, 2014 at 2:38pm

Tomorrow (15th July) we will be presenting the petition to politicians in Cardiff 

Comment by Alan Thomas on July 13, 2014 at 2:33pm

TSA campaign will be presenting their petition to politicians in the Senedd, Cardiff, Wales on Tuesday 15th July

I will be attending this important raredisease issue

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I've been recently diagnosed with spino-cerebellar ataxia 2

Posted by Stephanie on November 21, 2014 at 8:40am 7 Comments

I'm dealing with it. It runs in the family so I'm familiar. But I still have lots of questions.

Are there any modern treatments that help? I'm trying Chinese medical herbs, but I've only been taking it a week.

How do I tell my kids?… Continue

Um, hi.

Posted by MilkTea on November 6, 2014 at 7:07am 5 Comments

I joined this site weeks ago...but I am painfully shy and insecure when it comes to seeking out support and help. It took a bit of effort to even set up my profile...I think its because in my head I told myself that if I start becoming active on…



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