This video shows the TSA's current #Fight4Treatment campaign with father, Nick Dale, to make sure all people with TS has fair access to medicines, specialist...

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Comment by Alan Thomas on July 14, 2014 at 2:38pm

Tomorrow (15th July) we will be presenting the petition to politicians in Cardiff 


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Comment by Alan Thomas on July 13, 2014 at 2:33pm

TSA campaign will be presenting their petition to politicians in the Senedd, Cardiff, Wales on Tuesday 15th July

I will be attending this important raredisease issue

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Posted by imlatina on March 30, 2015 at 3:58pm 4 Comments

i'm new here.  does anybody know how fast ataxia symtoms increase?  i was just diagnosed last month. thanks.

not hungry?

Posted by heidy on March 27, 2015 at 12:11am 1 Comment

I would lose my appetite a lot of times before, so I told my doctor about it. He prescribed to me "megestrol", & it worked great to make me hungry. I don't take it anymore cus I don't need it. If you've lost your appetite, tell your doctor, that… Continue

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