What is LivingWithAtaxia.org?
LivingWithAtaxia.org is a dedicated
patient-to-patient support community for families affected by
Ataxia. LivingWithAtaxia.org is powered by <a href=
patient support communities for rare diseases, and is run by
volunteer moderators who have been affected with ataxia.
Who can join LivingWithAtaxia.org?
If your family has been affected by Ataxia,
consider LivingWithAtaxia.org your second home.
LivingWithAtaxia.org, as well as the rest of BensFriends.org’s
patient communities, is free for members to join.
What is Ataxia?
Ataxia is a rare, neurological disorder
characterized by dysfunction on the different parts of the nervous
system. People living with Ataxia usually have problems in
coordination of muscle movements.
You can learn more about <a href=
"http://en.wikipedia.org/wiki/Ataxia" target="_blank">Ataxia at
What is BensFriends.org?
In 2007, <a href=
"_blank">Ben Muñoz suffered a rare form of stroke caused by an
AVM. He was unable to find the support he needed during the most
difficult time, so he created an online support community <a href=
to connect with others like him. AVMSurvivors.org led to the
founding of BensFriends.org, driven to provide patient-to-patient
support communities for people living with rare diseases.
BensFriends.org is a network of patient
communities for people living with rare diseases. Launched in
November 2007, BensFriends.org provides valuable patient support by
creating and running compassionate, responsive communities.
BensFriends.org maintains dozens of patient communities and has
changed thousands of lives.
You can learn more about BensFriends.org at
<a href="http://www.bensfriends.org/" target=
"_blank">http://www.bensfriends.org or watch one of our
videos at <a href="http://www.youtube.com/BensFriendsVideos"