SCA6 Finally Genetically Confirmed

Well after 8 months of 2 lots of MRI's, E.M.G. nerve Conduction test,Walking in straight lines (which I cant do ) and being told I am sure it's not Ataxia It is just vertigo, I finally got my Genetic blood test in January, and the results on the 16th of March I have an abnormal expansion of the cacna1a gene, and according to the Genetics councilor I am therefor likely to develop SCA6.
During my genetic consultation I was told that they could not say I was suffering Ataxia now as they were not diagnosticians or Neurologists, but on seeing me walk in there and my behaviour she was 95% sure I was Ataxic.
I now have to wait for my Neurologist appointment in September before it is actually confirmed as Ataxia. As my Neurologist comes from the Royal Hallamshire Hospital (which has an Ataxia Clinic) and says he knows very little about Ataxia ...........why not just send me to the ataxia clinic!.......Oh well I guess I will just have to wait for September and a diagnosis.............I hope everyone is coping and keeping as well as they can