Living With Ataxia - Online Support Group

Disabled people have to work continually against destructive forces which see us as powerless, passive and unattractive. It seems that no matter how cheerfully and positively we attempt to go out in the world, we are bound to be confronted by someone whose response to our work of ordinariness, our difference from the norm leaves us feeling powerless and angry.

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Comment by piaf on March 27, 2013 at 9:01am

hi Deo, yes I totally agree with you, my son on two occassions has been assaulted and had his wallet taken, while pple standing around didnt help to even help him back on his feet, he was so frustrated and was crying, because as he said I couldnt get up mum to have a go at them. My heart just broke, at 38yrs old he feels that he is not a man, not because he has ever been violent to anyone, but the fact he couldnt protect himself from these feral animals who prey on the vunerable kath

Comment by rose on March 3, 2013 at 8:19pm
Good for you Judely...,LOL! If they take a joke, to heck with them...,ha! ;o)
Comment by napper4 on March 3, 2013 at 4:58pm

Lol, there's your problem, your shopping at Walmart, the unhappiest place on earth. Just give then the death stare Rose, they will think your crazy or drunk and steer clear. I make it a game. Who can I scare the bejeezus out of today?

Comment by Lori on March 3, 2013 at 2:12pm

Love it Judeley. The only people that would think your a jerk. Are the ones that say rude things anyways!


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Comment by Glitter on Butterflies on March 3, 2013 at 1:57pm
Lori and Rose - I put the "sign", Babe Magnet, on a piece of tyed-dyed duck tape on my wheelchair...I'm hoping that others get it and don't think I'm a pompous jerk.
Comment by rose on March 3, 2013 at 9:16am
Way to go Lori...,LOL! ;o)
Comment by Nan on March 3, 2013 at 8:28am
Hi,
I do not react to people's stares nor comment for if I do, I get tense and chances of a fall is certain!
I have to concentrate a lot to walk using a walker and selfishly I have learnt to be calm and not react as to preserve the remaining faculties for the years to come.
Comment by Ran on March 2, 2013 at 8:38pm

We are not powerless in any situation. We are not disabled. As a police officer I referred to my self as an enviromentalist. I took people out of one enviroment into another. That is what has happened to all of us. We are just in another enviroment than the rest of the world. We cant get angry we have to think postitve.  These were to be my golden years traveling and teaching.  I have had to adapt and it worked out perfectly for me.  I am now able to spend time with my grand daughter and family.  The one thing I should have done with my son.  If some one looks at me funny I tell them the problem and most want to hear more.  Never be ashamed or embarrased about who we are we are God's special people.  Accept it, hold your head, smile, and continue on. I have a cousin who has had cancer for years in and out of remission.. She told me our disease is like eating an elephant you take one bite at a time.

Comment by Lori on March 2, 2013 at 6:20pm

Rose I love what you said about your beauty. I just went out to lunch with my cousin. It was a  great time. She was surprised of my ataxia. Didn't really know what it is. She went up and ordered the food and got the water. Because we all know we cant carry things and walk. I made her leave before me. Because I didnt want her to see me walk. She would have gotten to upset. And I didn't need that. Needless to say we were sitting in the back of the restaurant. So I had a long walk. Yes a lot of people stared. Right at the door was a very handsome man. So I got nervous which makes things worse. So as I grabbed the door and tried to walk out. I said. " I know I'm beautiful" lol Yes I say stupid things. But I think I got to a point where I don't want to say mean things anymore.

Comment by rose on March 2, 2013 at 2:50pm
I may not be the norm, but my experiences have been different than most others. I use a cane when I leave my home to prevent falls (I call it my "security cane", kind of like a security blanket for an adult...,ha!). Anyway, people I don't even know have held doors open for me, which I appreciate very much! I even had a gentleman, who was talking on his cell phone, ask if he could open my car door for me, as I had my cane in my right hand and a package in my left. Therefore, I was very thankful! If anyone is staring at me, I wouldn't notice anyway because I'm so focused on not falling! Or, like Barney said, humor is a great diffuser. Maybe people stare as that can't get over my beauty...,LOL!!! Seriously, guess I don't care what anyone thinks, as it's their problem, not mine! ;o)

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