Living With Ataxia - Online Support Group



Movement

Walking
Today I stumble little;
Yesterday I fell.

Hands
Now my hands craft letters unthinkingly;
Last night I stopped trying.

Language
Tuesday the words flowed like water;
This morning I stutter and search for words and get lost.

Pain
Only an inconvenience today;
Last night I wanted serious drugs.

Joints
Today I walk like I'm 80;
Last week I made it to Lilith Fair

Thought
When the fog lifts, I recognize my old self;
Other times, I mourn the stranger I have become.

Memory
I forget this one.

Depression
Sometimes the clouds part, and life is sunny;
Other times, I stay in bed.

Connecting
Today it is pure joy;
On Wednesday I turned off my phone.

Fear
Today I could fight the devil itself;
Tomorrow it may batter me.

Sadness
Last week I shed honest tears;
Last month I could not find them.

Loss
Now it takes it's rightful place;
Tomorrow it may blind me to all else.

Acceptance
At moments, I rest in it like my favorite robe; I love the river
and delight in the journey;
Most of the time I want to break shit.

Joy
Can surprise me;
The unspeakable beauty of a rose; the scent of baby powder; my hands in warm soapy dishwater; a smile from the bus driver; my daughter's laughter; my friend's
insight; my cat purring; a witty exchange; a stranger's kindness; clean sheets;
early morning and evening light; a song that gets it just right; watching a beautiful dance; the crash of a wave...
In those moments, I am happy, finally, just to be here.;
But then I lose sight and notice none of these things.
When I can notice the good, I regain hope.

Perhaps this illness is growing me up.








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Carol Gow Comment by Carol Gow on July 16, 2010 at 3:47pm
Hello Lorinn
This is beautiful. I particularly like language and thought.
Yes, the condition of ataxia is 'growing me up' but you and your talents are still there.
Remember it is alright to have 'off days, we all do.
Take care of yourself
Carol
Lorinn Coburn Comment by Lorinn Coburn on July 16, 2010 at 12:39pm
sorry if this is a duplicate.

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