I feel a little better, then I have an Ataxia episode and get down again. Its a vicious cycle!

Comment

Comment by Pat DeSario on August 5, 2010 at 9:31am

JC keep strong - I feel the same way.

Pat

Comment by John "JC" Colyer on July 25, 2010 at 9:35am

Louise,

Thanks , I know I'm not Alone!

Take Care, JC

Comment by John "JC" Colyer on July 25, 2010 at 9:33am

Carol.

Thanyou for your kind words and advice, and don't worry my spelling isn't always good either!:)

Take Care, JC

Comment by Carol Gow on July 25, 2010 at 3:57am

Hello J.C.
Sorry about the extra F in different. Sometimes the old fingers won't do as they are told, either that or dyslexic keyboard.I like to think it is the latter!!!!
Take care
Carol

Comment by Carol Gow on July 25, 2010 at 3:51am

Hello J.C.
I don't know what is worse having this condition all the time or having sporadic attacks. I suspect the latter. If you have this condition permanently you know what you must do on any given occasion.
I can't tell you what to do except not to think of other people. Yes they are probably thinking 'what's wrong with him' but they do think it for the right reason. When you were 'able bodied' you probably thought the same. A lot of people don't know how to handle people that are 'diffferent' but they mean no harm.
I tell people about my condition and I find it helps.
By forcing yourself you make yourself worse. Try telling yourself, everything is fine and I'm going to enjoy myself.If people have a problem with you or your condition it is exactly that theirs.
Please don't think you are alone because you are not.
Regards
Carol

Comment by Louise Davy on July 24, 2010 at 8:57pm

Hi JC, I know exactly how that feels, I am always very depressed for a week after an 'episode' it makes it very hard to go out and act normally so I usually only go out when I am with friends that I feel 'safe' with - that is who know my history and can spot the signs of an oncoming episode. I am very grateful though that my ataxia is episodic so I don't live in a constant state of ataxia but I have minor symptoms all the time.

Louise Davy EA(2)