Living With Ataxia - Online Support Group

I didn't realize the strength of this disease

My family has a pool, and we changed liners today. Instead of filling it up with a hose pipe we filled our pool up with water from a fire hydrant using many fire hoses. It finished within a few hours, but by that time everybody left. So I thought I'd start "cleaning" up, because we have to return them to the firehouse tomorrow morning.I was rolling up the fire hoses cuz we were done...OH MY GOSH...

I've experienced some dizziness before and imbalance, but when I was rolling the first one up(by myself of course) you talking about dizzy, imbalance.....i hardly ever sweat, I was drenched, my legs were tremoring so bad I finally just stopped because it's not worth hurting myself. I went to take a shower, and I had to turn the water to cool and hold onto the walls I was so dizzy.

Whew....lesson learned.

Views: 232

Comment

You need to be a member of Living With Ataxia - Online Support Group to add comments!

Join Living With Ataxia - Online Support Group

Comment by Judita on July 26, 2014 at 10:08pm

I build earwax quickly too.

 Don't  know how to make this type smaller!

Dizzinessfromloosecrystalsinyourhead

http://www.swedish.org/about/blog/april-2013/dizziness-from-loose-c...

"This sounds a bit like the punch line of a bad joke, doesn’t it? But believe it or not, it’s true.

Dizziness can be caused by loose crystals called “otoconia” in your inner ear, which is known as BPPV". 

Comment by Iwentdownunder on July 26, 2014 at 9:08pm
Judita, what are crystals? I have to go to an ENT to get my ears cleaned out often. I don't know why, but I produce lots of earwax that gets dry or hard instead of working its way out. It makes my balance worse I think.
Comment by Judita on July 26, 2014 at 8:40pm

I have "mild cerebellum glutenataxia" and my ear doctor suggested i have a balance test. It turns out i had little crystals dislodged in my inner ear, The practitioner manipulated my head and neck, and In a few minutes, I was and am 90% better! I could hardly get up before after I did reclining yoga postures. He said it sometimes happens with yoga. I am still a bit dizzy, but nothing sever. Thanks for sharing this. I will be careful the next time I go to the beach!

Comment by Irene on July 24, 2014 at 8:23pm
I can so relate to your comments. I have just got home from an exercise class for old people and I am exhausted !! I'm only 52 !! Definitely helping xx
Comment by Ran on July 24, 2014 at 5:57pm

You better buy a floatation vest. I have fallen 2 times in the pool one time alone and broke my glasses, scraped my knees, and my legs became usless fortunately I was near the ladder and got out. The second time I fell into the cover had my son not been there I would not be here. I have found that when I am in the water I am fine for a while but, suddenly lose control of my legs.  I have lost control in my shallow end and went under. I ADVISE anyone with SCA and will be in water have one on.

Comment by branthony on July 24, 2014 at 5:01pm

Been there as well. My eyes dart around and I can't keep them on one object when that happens.

Comment by rose on July 24, 2014 at 4:47pm
Dear Iwentdownunder, Been there, done that, but not with a fire hose. I swept the front porch one day and experienced the same symptoms as you! You're not alone in this! Cicina's right, grab bars in the bathroom and shower are a saving grace, especially if dizzy! ;o)
Comment by Cicina on July 24, 2014 at 1:22pm
Yes, this is very familiar.
You said you were "hanging on to the walls" in your shower. Make sure you get a bar to hold on to. Bathrooms are the most dangerous places in the house for people with no balance. It is the easiest place to slip and fall. Be careful....
Try to pace yourself and set your limits. Take care.
Comment by Patsy on July 24, 2014 at 12:47pm

yes sounds familiar... the more determined you are to continue, the worse it gets.. I think it's a combination of anxiety and exhaustion.

My neuro told me that trying to control our muscles is like doing a 10 mile hike each day.  It's hard to understand just how much strength and energy we use to control muscles and the pain is, according to my neuro physio, a secondary condition.

Depressing isnt it!   Stay positive.. easier said than done eh ;)

Comment by Kathy G on July 24, 2014 at 12:40pm
Sometimes I'm exhausted after showering & dressing in the AM., I. Have to take a nap!

Kathy

Help Us Help Others

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Bens Friends

To Support LivingwithAtaxia.org, Click an Ad. Or Two.

Join Ben's Friends Mailing List

Blog Posts

idiopathic late-onset cerebellar ataxia

Posted by Elle on September 17, 2014 at 11:01am 3 Comments

My 1st time input on this site..to tell you all a bit about myself..so HELLO all:)

Just don't know where to start. Aahhh well, an effort then, 2002: strange feeling in my legs while running, like they were slowing me down. Was it because…

Continue

Having to Give Up on Things

Posted by Marjorie on September 8, 2014 at 12:44pm 2 Comments

I just said in another post that my baby is Type A. Well, he gets it from me and I'm not proud of it. I have an AAS, a BS, and a BA, all in different things. I'm one thesis and one class away from an MS, and I just can't do it right now.  My baby…

Continue

© 2014   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service