Heditary

Comment

Comment by stilldancing on March 29, 2013 at 11:47pm

I have hereditary ataxia and three children, none of them have it. I also have four grandchildren and I think one of them may have it. A very mild form, tho. I wouldn't worry about passing it onto your children. The form of ataxia that I have, I received from an ancestor. No one in my immediate family has it. It seems to skip generations.

Comment by dgrummel on March 29, 2013 at 5:20pm

.P.S. - The son of my sister that died,is in his late 20's. He was a teacher in Phoenix but can no longer work.

He married and adopted 2 Mexican boys.

Comment by dgrummel on March 29, 2013 at 3:46pm

I also have Spinocerebellar Ataxia, heditary.  Unfortunately we didn't know about Ataxia until  my Mother developed Ataxia. By then I had three children. Luckily nonme of them show any signs of Ataxia. Again, unfortunatrely, in my family it was not so good. I have two brothers and two sdisters. My Mother died at age 67 of Ataxia. My self andf my two sisters developed Ataxia. My younger sister died of taxia at age 48. My other asister is confined to a wheelchair, other than that she seems OK.  I'm not doing so well. I can't drive or work. In May of 2012 I spent 12 days in Intensive Care with pancreatitis. I also developed diabetes. I would think twice about having children,but I must say I am proud of and love my children.

Comment by Mauro de Sales Fortes on March 14, 2013 at 10:45am

findacureSCA3,

if you want to know more things about stem-cells therapy from China, send me a email for bobegico@yahoo.com.br I Intend go China, in mad and I have SCA3 too

Mauro

Comment by Mauro de Sales Fortes on March 14, 2013 at 10:45am

findacureSCA3,

if you want to know more things about stem-cells therapy from China, send me a email for bobegico@yahoo.com.br I Intend go China, in mad and I have SCA3 too

Mauro

Comment by Mauro de Sales Fortes on March 14, 2013 at 10:02am

Lewis,

my mail address is bobegico@yahoo.com.br 

Sorry I hadn't seen your comment on monday

Mauro

Comment by Mauro de Sales Fortes on March 14, 2013 at 10:02am

Lewis,

my mail address is bobegico@yahoo.com.br 

Sorry I hadn't seen your comment on monday

Mauro

Comment by Mauro de Sales Fortes on March 13, 2013 at 1:27pm

Rose,

I think this way too (I ha ve nothing)) to lose, only the money)

My treatment will be on May, in Shenzen, China, I hope all runs well

Don't worry, I'll keep in touch

/At least,I've tried.

Mauro

Comment by rose on March 13, 2013 at 11:15am

Hi Mauro, You have nothing to loose, so go for it! I hope stem cell therapy is successful for you, that would be wonderful! Yes, let us know how it goes for you! My best wishes..., ;o)

Comment by Lori on March 13, 2013 at 10:11am

Let me know how it turns out.

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