Ataxia (International) Survivors, Friends and Family,
We hope this message finds you well with high spirits and inner joy. We’re happy to inform you that our Ataxia (International) community continuously been growing. And as always, we’re here to give strength and support.
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IN THIS ISSUE
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2. Give the Gift of Support Through The Indiegogo Campaign
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Welcome New Members
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No obstacle in life is too great, as long as you have the love and support of caring friends and family members. As always, we are here 24/7 to provide encouragement and support to patients who experience challenges in life. You, your family and friends are more than welcome to be a part of this loving group. Feel free to share your thoughts, and reach out to the other members who are always willing to give you the kind of support you need. Consider this amazing community as your second home, as it is also the home of our 722 members (and still growing!)
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Give the Gift of Support to Patients with Rare Diseases Through The Indiegogo Campaign
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Many projects at Ben’s Friends have turned into reality – thanks to the support from members, volunteers, and donors. Despite the many milestones we have reached, there is still a longer distance we have to go. Many patients with rare diseases still do not have a community to support them. We constantly receive e-mails that request for a support group for a certain rare disease. However, we cannot accommodate all those requests.
Help us make this happen. We want to continue support patients and create more communities that will make everyone with rare diseases feel that they are not alone. Thus, we would like to invite donations from friends, family members, and everyone who believes in our cause.
This month, we’ve begun our annual sponsorship drive at Indiegogo.com.
If you are on Facebook, please ask your friends to share the link with a little note. If you’re not on Facebook, an email also works. Businesses are encouraged to purchase a sponsorship.
Here is the link: http://www.indiegogo.com/Bens-Friends-Builds-Support-Groups-for-Pat...
We will truly appreciate any donations you can give. We want to sustain the support and friendship we give. With your help, we know we always can.
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Community Stats
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As of today, we have 722 members, 3,175 total monthly visits to site, 1,719unique visitors and 11,077 monthly page views. Kudos to everyone!
Warmest Regards,
Your Community Moderators
Comment
Comment by Stevi on January 5, 2012 at 7:16pm
Comment by lakshmi singh on December 24, 2011 at 4:47am merry Christmas everyone !!!
Comment by debbyj on December 22, 2011 at 12:44am Keep on keepin' on all of ya! It's hard to see yourself get a little worse each day, but I get through it "one day at a time". That's really our only option, right? Merry Christmas to all.! ;-)
Merry Christmas to all Ataxia patients, some days it is hard but keep going. Good luck in 2012,
Regards Carol x
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Amyloidosis
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Lupus
Multiple Myeloma
Myositis
Narcolepsy
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
Posted by Timothy M Webber on May 31, 2012 at 7:56am 2 Comments 0 Likes
Ok,not sure where to start, and not quite sure how I feel about this. As I'm sure many of you have gone through this or are going through this or something similiar. I use a cane (have been for almost 2 years), and for the last 5 days cannot…
ContinuePosted by Armando Abrero on May 28, 2012 at 8:03pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
Posted by John "JC" Colyer on May 27, 2012 at 8:45am 3 Comments 0 Likes
Something I never thought I’d say!!
Having a disability has different dimensions of struggle:
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3. Everything else!
Its most times…
Posted by Armando Abrero on May 27, 2012 at 8:10am 0 Comments 0 Likes
Meet Sam Bridgman, a 21 year-old junior finance major at University of Portland. He is a native of Seattle, where he grew up like any sports loving boy but more partial with baseball and basketball until he started showing signs of being ill. At…
Continue© 2012 Created by BensFriends.org
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