Living With Ataxia - Online Support Group

Ataxia (International) Survivors, Friends and Family,

We hope this message finds you well with high spirits and inner joy. We’re happy to inform you that our Ataxia (International) community continuously been growing. And as always, we’re here to give strength and support.

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IN THIS ISSUE
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1.   Welcome New Members

2.   Give the Gift of Support Through The Indiegogo Campaign

3.   Community Stats

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Welcome New Members

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No obstacle in life is too great, as long as you have the love and support of caring friends and family members. As always, we are here 24/7 to provide encouragement and support to patients who experience challenges in life. You, your family and friends are more than welcome to be a part of this loving group. Feel free to share your thoughts, and reach out to the other members who are always willing to give you the kind of support you need. Consider this amazing community as your second home, as it is also the home of our 722 members (and still growing!)

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Give the Gift of Support to Patients with Rare Diseases Through The Indiegogo Campaign

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Many projects at Ben’s Friends have turned into reality – thanks to the support from members, volunteers, and donors. Despite the many milestones we have reached, there is still a longer distance we have to go. Many patients with rare diseases still do not have a community to support them. We constantly receive e-mails that request for a support group for a certain rare disease. However, we cannot accommodate all those requests.

Help us make this happen. We want to continue support patients and create more communities that will make everyone with rare diseases feel that they are not alone. Thus, we would like to invite donations from friends, family members, and everyone who believes in our cause.

This month, we’ve begun our annual sponsorship drive at Indiegogo.com.

If you are on Facebook, please ask your friends to share the link with a little note. If you’re not on Facebook, an email also works. Businesses are encouraged to purchase a sponsorship.

Here is the link: http://www.indiegogo.com/Bens-Friends-Builds-Support-Groups-for-Pat...

We will truly appreciate any donations you can give. We want to sustain the support and friendship we give. With your help, we know we always can.

 

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Community Stats

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As of today, we have 722 members, 3,175 total monthly visits to site, 1,719unique visitors and 11,077 monthly page views. Kudos to everyone!

Warmest Regards,
Your Community Moderators

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Comment by Stevi on January 5, 2012 at 7:16pm
I have been diagnosed with SCA2. I had to resign my position as a dental hygienist due to haNd tremors. It took 18 weeks for me to be approved for disability. I go to physical therapy 3 days a week. I'm overcoming my symptoms.
Comment by lakshmi singh on December 24, 2011 at 4:47am

merry Christmas everyone !!!  

Comment by debbyj on December 22, 2011 at 12:44am

Keep on keepin' on all of ya!  It's hard to see yourself get a little worse each day, but I get through it "one day at a time". That's really our only option, right? Merry Christmas to all.!  ;-)

Comment by Carol Smith on December 21, 2011 at 10:54am

Merry Christmas to all Ataxia patients, some days it is hard but keep going. Good luck in 2012,

 

Regards Carol x

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