Living with Ataxia

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Arif Ansari Financial Stability

The worst of all fears with ataxia is financial stability. The fear of losing your job and not having the financial stability for you and your family.

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Added by Arif Ansari on March 4, 2010 at 12:10pm — 3 Comments

Ben Munoz Ataxia Spinocerebellar and Ataxia Telangiectasia Qualify Immediately for U.S. Social Security Disability Benefits

We'd like to pass along some good news for the American members of our community.

The U.S. Social Security Office has JUST added Ataxia Spinocerebellar and Ataxia
… Continue

Added by Ben Munoz on February 20, 2010 at 2:00pm — No Comments

Alan Thomas Penwest Announces Initiation of Phase IIa Clinical Trial of A0001 in Patients With Friedreich's Ataxia

Penwest Announces Initiation of Phase IIa Clinical Trial of A0001 in Patients With Friedreich's Ataxia

http://www.globenewswire.com/newsroom/news.html?d=181579

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Added by Alan Thomas on February 18, 2010 at 2:10pm — No Comments

Alan Thomas Row the Atlantic Boost

Come on, BOYS !!!, your nearly there

read their BLOG http://blog.mailasail.com/redarrow

and give them a BOOST, send them an email or message

Alan

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Added by Alan Thomas on February 18, 2010 at 7:29am — No Comments

Alan Thomas Carers book The "Selfish Pigs" Guide to Caring

The "Selfish Pigs" Guide to Caring by Hugh Marriott

<a href="http://www.selfishpigsguidetocaring.co.uk/">BOOK website</a>

<a href="http://alzheimers.org.uk/site/scripts/documents_info.php?categoryID=200120&documentID=674&pageNumber=3">alzheimers.org.uk Book review </a>

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Added by Alan Thomas on February 13, 2010 at 4:03pm — No Comments

Alan Thomas Rare Disease Day flickr photo album

Rare Disease Day

flickr photo album

<a href="http://www.flickr.com/photos/31585490@N05/">RRD photos</a>

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Added by Alan Thomas on February 12, 2010 at 12:30pm — No Comments

Cindy Fallsen treatment coverage

What sorts of treatments for Ataxia do you guys find your Health Insurance willing to cover? Some Worldwide Medical Insurance companies offer Affordable Health Insurance with all sorts of benefits. Others are resistant to covering anything that would hin… Continue

Added by Cindy Fallsen on February 11, 2010 at 4:22pm — No Comments

jason conrad jones has

anyone heard of remap wolverhampton ss got them out to lynn when she was with child they do adaptations to cots and prams, there is also trhe dppi (disabled pregnancy international they do all knids oif publications from nappy changing to finding a adapted cot for yourself and baby Continue

Added by jason conrad jones on February 7, 2010 at 7:35am — No Comments

Kati Adapting and stuff!

Glad the snow has cleared, although someone told me more is forecast, hopefully it will only be light again and won't settle for long.

I couldn't remember whether pancake Tuesday was last Tuesday or next Tues but they were selling the stuff in shop to make them so I got some stuff and made them today (just in case I missed them tuesday.. lol) If its this Tuesday coming, I'll have them again for lunch on Tuesday!

… Continue

Added by Kati on February 6, 2010 at 6:23am — 1 Comment

Alan Thomas *** Row the Atlantic***

Keep up with the progress

http://blog.mailasail.com/redarrow

map of their voyage

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Added by Alan Thomas on February 5, 2010 at 8:11am — No Comments

Alan Thomas Hopkins Medicine Ataxia Symptoms

just found on hopkins medicine Cognitive and Mood Problems - In addition to motor dysfunction, patients with cerebellar degeneration may have cognitive and emotional difficulties. The cerebellum plays a role in some forms of thinking. Patients with cerebellar atrophy may have impaired recall of newly learned information or difficulty with “executive functions” such as makin… Continue

Added by Alan Thomas on February 3, 2010 at 2:18pm — No Comments

Alan Thomas Row the Atlantc

Dont forget, to keep up with the boys. read their blog RTA BLOG Continue

Added by Alan Thomas on February 1, 2010 at 6:29am — No Comments

Kati Apple iPad and Proloquo2go (text to speech)

You may remember a while back I did a post on the then dubbed 'MacTouch' by apple and its potential for Ataxians as a portable communication device. It is almost here! Announced on 27th Jan by Steve Jobs (big apple man.. lol.. not sure of his official title!) the new 'iPad' will be released in two versions.

… Continue

Added by Kati on January 30, 2010 at 8:30am — No Comments

Alan Thomas *** Karen Darke *** Inspirational Paralysed Female Adventurer

Have a peep at Karen Darke My first wheelchair, was bought from Karen. Now, the wheelchair, is on its way to Kajiado, Kenya. Continue

Added by Alan Thomas on January 29, 2010 at 4:09pm — No Comments

Scott Orn SavantMD Videos on Ataxia

I thought folks might want to see the blog post I put up thanking www.SavantMD.com for talking about Ataxia through videos. Dr. Savant is a friend and my doctor. Hopefully his videos help. What other questions would people like him to answer? http://www.kennykellogg.com/2010/01/savantmd-living-with-ataxia-partner-for.html Cheers. Scott Continue

Added by Scott Orn on January 26, 2010 at 2:00am — 4 Comments

Lorraine Lerner interesting article on chantix

http://www.babelfamily.org/en/latestataxianews/606-usf-study-with-varenicline-from-wheelchair-to-walking- Continue

Added by Lorraine Lerner on January 16, 2010 at 1:21pm — 9 Comments

Shane Bratby Top Six Tips to cope with the snow

Being disabled myself makes me wonder how all the people with mobility problems are coping with the snow, as I know it can be difficult, so i thought I would help and list top ten tips to cope with the snow. Here are Top Six Tips to cope with the snow: 1. Wrap up warm you don’t want frostbite, hypothermia, flu. 2. Ask a friend or a family member to stay with you until the bad weather is over. 3. Shopping can be done in comfort of your own home from big supermarket websites like… Continue

Added by Shane Bratby on January 9, 2010 at 3:42pm — 3 Comments

Lorraine Lerner chantix

I'm on my 3rd week of chantix. my dizziness seems to be going away. my body is alittle shaky and bouncy. I'm not recommending it to anyone. it can have adverse effects. I googled it yesterday and I read very negative reports from smokers on chantix. I got the impression some were downing booze along with chantix. it can be very bad mixing pills and booze. anyway I'm just so glad not to be dizzy all day. Continue

Added by Lorraine Lerner on January 7, 2010 at 10:46am — 4 Comments

Kati Snowbound!

We have really deep snow here, so I haven't been able to get out for 2 days, the snow in drive is half way up Inca's legs so no way I can get the scooter or powerchair up there.

She has been playing in the garden though, I sit in doorway (my bedroom has door into garden) and chuck some of the snow that's in… Continue

Added by Kati on January 6, 2010 at 7:35am — 2 Comments

David (Spinner) Henry Ride Ataxia North Ca. 2010

Date Saturday, May 15, 2010 @ 8:30 AM - Sunday, May 16, 2010 @ 4:00 PM local time Address Folsom, CA to Grass Valley, CA Registration Closing Date Thursday, May 13, 2010 Event Overview Ride Ataxia NorCal will take place in the scenic foothills of Northern California from Folsom, CA to Grass Valley, CA and back on March 15 and 16, 2009. The two day route will cover 110 miles. The event will also include 10 and 25 mile route options, on March 15, inviting all levels of riders. Beneficiaries P… Continue

Added by David (Spinner) Henry on January 1, 2010 at 3:24pm — No Comments

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