Living with Ataxia

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Alan Thomas My friend Sarah needs YOUR vote in the BA Great Britons Award

My good friend, Sarah, (Solo female, rower of the Indian ocean and to Solo circum-navigate the world) neds our help -- you know YOU WILL !!!

Sarah Outen has posted a new item, 'BA Great Britons Award - your
rower/fruitloop needs you! '

Folks,

I've been shortlisted for the latest round of the BA Great Britons Award and
need your vote to help me win some flights. I will use them to head across the
pond to meet my new weatherman Mr Lee Bruce for discu

… Continue

Added by Alan Thomas on September 3, 2010 at 2:44pm — No Comments

Alan Thomas THANK YOU from Race online2012 (Alan)

Thank You - Living with Ataxia

You are one of the supporters - now at OVER 712 !! - that has added its name to our campaign.

Thank You Thank You

Alan "Peoples Task Force" for http://raceonline2012.org/

Continue

Added by Alan Thomas on September 2, 2010 at 3:04pm — No Comments

Karen Dixon Blood test results

I just go results from bloodwork done a couple of weeks ago, RBC, HCT and Lymphs low...but what I'm really confused about are my GFR levels...I'm 42, and my GFR levels are 71...isn't that a little low? does anyone know about GFR levels? Continue

Added by Karen Dixon on September 1, 2010 at 9:36am — No Comments

Karen Dixon good morning........it's a beautiful day!

we'll it is in sunny New Jersey...calm before the storm...that is Earl arrives this weekend. The glass is half full right ?... Continue

Added by Karen Dixon on September 1, 2010 at 7:22am — No Comments

Kati A day in the life of....

I think one of the most difficult aspects of having Ataxia is the amount of energy it takes to do things.

Here's just an average day, involving going to local shop and walking my dog.

I wake up around 7am yesterday, stretched out in bed for a few mins, stretching arms and legs and lifting them off bed. sat on rollator seat next to bed and used feet to push myself to back door, let Inca out then push myself through doors into bathroom. I find this easy way to move around house… Continue

Added by Kati on September 1, 2010 at 6:38am — 3 Comments

Amy Nakai a bad weekend

hi everybody!!!
i had a horrible weekend! I have SCA6 & i started falling backwards a lot (at least once a week since
about 5 years ago). I've broken 6 ribs, a broken ankle, and fractured my tail bone. and a lot of black and blue. This weekend i fell 4 times- once on Fri., once on Sat, and twice on Sun.
anyone out there that falls too??? i would like to know what you do to prevent falling. i hit the back of my head a
… Continue

Added by Amy Nakai on September 1, 2010 at 12:39am — No Comments

jason conrad jones oh carol

trust you to think of that. but you now something carol? your absoluetly right Continue

Added by jason conrad jones on August 20, 2010 at 3:24pm — 1 Comment

John "JC" Colyer Another pride swallowing day

Today I went to motor vehicle and brought the form my Dr filled out and recieved a handicapped parking placard. I've put it off, but I realize how in certain situations I need it. Is it available in the UK? Continue

Added by John "JC" Colyer on August 20, 2010 at 10:39am — 8 Comments

Stace Webb (Mr.) Spinocerebellar Degeneration

My disease that you don't have listed. Stace Webb (Mr.) Continue

Added by Stace Webb (Mr.) on August 13, 2010 at 11:12am — 4 Comments

Thomas Bang A hard day

I fell last night and really thought I had brok my hip. I was having a good day on the walker but it ended .The xray showed no broken hip which I am very happy about. Having no insurance is bad, mine won't start until Nov 1. Medicare. Hope veryone has a better day and week.

Tommy

Continue

Added by Thomas Bang on August 3, 2010 at 10:53pm — 7 Comments

Janis P. Landers Ardamax

There’s an old or perhaps not so old ardamax keylogger download. “It takes time, energy and money to get stuff, keep stuff *and* get rid of stuff.”

It appears that ardamax keylogger download removal has become one of the much-concerned-about issues of late. Junk removal, or throwing out things that we do not want anymore is one thing that we will have to do sooner or later. For those who have been living under the

… Continue

Added by Janis P. Landers on July 29, 2010 at 11:01am — No Comments

John "JC" Colyer I feel a little better, then I have an Ataxia episode and get down again. Its a vicious cycle!

I 've been forcing myself to go out in public to try and socialize. When I start I feel good,then I get in a situation where my Ataxia makes it hard to function correctly and I become self conscious again. I realize everyone has there struggles and nobody is perfect but I feel the eyes of people saying ,"Whats wrong with him?". I limit myself because of it, its no way to live!

Continue

Added by John "JC" Colyer on July 24, 2010 at 6:54pm — 7 Comments

Lorinn Coburn 7/20/10

Tuesday morning, looks to be a nice one. Heard a bird at about 4:15, was almost dawn. Was it a lark? Must look up my bird calls again. I do love listening to them!

Have my app't to apply for disability today; so many mixed feelings. But I will just focus on here and now, and enjoy the day instead of waiting for the afternoon!
Continue

Added by Lorinn Coburn on July 20, 2010 at 8:51am — 1 Comment

Faye Mays Eyesight change

I just got glasses last year. (age 54) Seems like my eyesight, with ataxia, is getting worse. My eyesight is blurred and sometimes double vision if I am really tired. Is this a usual thing with others? Continue

Added by Faye Mays on July 16, 2010 at 1:47pm — 5 Comments

Lorinn Coburn Poetry and other musings



Movemen
… Continue

Added by Lorinn Coburn on July 16, 2010 at 11:00am — 2 Comments

Bones An Introduction to Bensfriends.org!!!!

We have some important information we are happy to announce!


As you all know we run support networks for people affected who have a rar

… Continue

Added by Bones on July 15, 2010 at 11:45pm — 1 Comment

David (Spinner) Henry Ride Ataxia Philly 2010

… Continue

Added by David (Spinner) Henry on July 14, 2010 at 8:40pm — No Comments

Lorinn Coburn 7/14/10

Woke up at 2:30 am, decided to do a bit of research on the whole thyroid/ataxia issue. (Thanks Kati for the impetus!)

Interesting stuff. Lots of talk about CA being caused by thyroid dysfunction, but now I'm wondering if it may be the other way around. All the women in my family have had thyroid dysfunction: so is it a chicken/egg kind of thing?
I'm getting excited to begin at OHSU (Oregon Health Science University) and learn more about these things. Not because I
… Continue

Added by Lorinn Coburn on July 14, 2010 at 6:53am — 5 Comments

Alan Thomas Living with Ataxia LOGO on Race online 2012 Home page

On the homepage of Race online 2012 http://raceonline2012.org/

on the scrolling, latest sign ups LWA has it LOGO displayed.

http://raceonline2012.org/

Continue

Added by Alan Thomas on June 26, 2010 at 9:32am — No Comments

jason conrad jones execercise

hi jenny im glad you are enjoying yourself at your slimming club im a bit of a buddhist as i belive if you are well on the inside you will feel good on the outside plus the fact you are getting out there meeting people well done hon Continue

Added by jason conrad jones on June 25, 2010 at 4:38pm — 1 Comment

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