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Jeannette Hill's Discussions

Work Focused Interview

Thank you - have calmed down a lot. This is not an interview to determine that I'm fit for work, but to sit and patronise me and tell me how to write a cv, and tbh if they want to waste more time and…

Replied Feb 25

Work Focused Interview

My Uncle will be around later today and will help - it's just not nice!

Replied Feb 24

Work Focused Interview
8 Replies

I am on higher rate DLA, my head spins most of the time, I can walk, but my balance is so bad that quite often I need to know a friend is nearby that I can grab, handwriting is very slow and uncomfor…

Started this discussion. Last reply by Kati Feb 25.

DLA and I'm not normal

I know exactly what you're saying - I am fortunate that I'm not in a wheelchair, but sometimes even I feel that I'm not properly disabled and tend to trivialise my issues. You do get used to things a…

Replied Feb 24

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Kati replied to Jeannette Hill's discussion 'Work Focused Interview'

Apparently, according to one site, if you are in receipt of the higher level of DLA Care (doesn't apply to mobility part) you are automatically exempt from this process of assessment for work on the new ESA.

February 25

Marie Turner replied to Jeannette Hill's discussion 'Work Focused Interview'

Oh I see .One of those interviews Good luck.

February 25

Jeannette Hill replied to Jeannette Hill's discussion 'Work Focused Interview'

February 25

Marie Turner replied to Jeannette Hill's discussion 'Work Focused Interview'

Hi Jeanette I hope you are recovering from your nasty shock. It is horrible to receive nasty letters. I hate the post especially brown envelopes. Also I used to receive acrimonious letters from my ex husbands solicitor which frightened me on numerou…

February 24

MG replied to Jeannette Hill's discussion 'Work Focused Interview'

I live in the United States. They have us fill out all sorts of forms so I understand the fear. Half of all Americans who are eligible for a food benefit(food stamps) don't get benefits because they do all sorts of deceptive things to discourage pe…

February 24

Kati replied to Jeannette Hill's discussion 'Work Focused Interview'

which part of the benefit do you get the higher rate for? mobility or care? one of them has 3 levels and other only has two i can't remember right now which is which. Apparently according to stuff on internet under the new tighter PCA rules for the…

February 24

Jeannette Hill replied to Jeannette Hill's discussion 'Work Focused Interview'

My Uncle will be around later today and will help - it's just not nice!

February 24

Kati replied to Jeannette Hill's discussion 'Work Focused Interview'

This must be for the new ESA benefit? I live on own too and it is scary when people send you letters saying they gonna cut off your benefits or electric and come around with police (as happened to me once). If you have family member or friend who c…

February 24

Jeannette Hill added a discussion

Work Focused Interview

February 24

Jeannette Hill updated their profile

February 24

Jeannette Hill replied to Marie Turner's discussion 'DLA and I'm not normal'

February 24

Jeannette Hill updated their profile photo

February 16

Jeannette Hill replied to Michael's discussion 'Transition!'

Reading this I realise I am so lucky - mine seems to be a very slow progression - in fact at the moment it doesn't seem to be getting any worse (finger's crossed). I cannot write properly, and it is very uncomfortable if I do. I used to love art and…

February 15

Sarah Lacey replied to Jeannette Hill's discussion 'So tired'

Thankyou Micheal I don't feel alone now I guess having Ataxia for so long I have been left to 'get on with it' I thought I was the wierd one as all my family without Ataxia often become tired later than myself but need more sleep than me. Thanks aga…

February 14

Jeannette Hill replied to Jeannette Hill's discussion 'So tired'

Thanks

February 13

Michael replied to Jeannette Hill's discussion 'So tired'

I have just recently been to see my GP about a number of things. One of them was about my problem getting off to sleep. I too have been feeling constantly 'worn' and often tired throughout the day lately. Medication from the doctor would be both ve…

February 13

Profile Information

Are you a patient, relative, friend, or medical professsional?

Patient

What type of ataxia do you have?

Cerebellar

When were you first diagnosed?

May 1, 2003

Have you been formally/medically tested for ataxia?

Not Sure

Is your ataxia progressive?

Not Sure

Is your ataxia hereditary?

If hereditary, do other members of your family have ataxia?

How has ataxia affected your quality of life and ability to work?

Yes

What affects your ataxia (food, stress, etc)?

Stress, lack of sleep

How has your family responded to your ataxia?

very positive, apart from my husband who had an affair and left

Please share your story with the community...

While pregnant in 2002 developed CA - became depressed and then husband felt sorry for himself, had an affair and left!

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At 3:11pm on February 4, 2010, Alan Thomas said…: Hello and Welcome

I am sure you input, will be usefull.
You will find us very friendly.
Which part, of the UK?

Alan Thomas
Ataxia South Wales
Ataxia trustee board member