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Carol Gow
- Female
- Plymouth
- United Kingdom
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Carol Gow's Discussions
Ablequip Wheel-link
Hello Kati A very ingenious device which has potential. It is sickening when you can't move between aisles because of obstructions. This is always the case at my local shop. The only thing that worri…
Replied 15 hours ago
Best & Worst of Living With Ataxia
Hello Bill I agree with Kati, that was a wonderful response. Time we met up again, I fancy some fish and chips!! Love to you and big hug for Joe Look after yourself. Carol
Replied Mar 4
Ataixa support groups
Hello Patsy Whilst I have not taken your message lightly I did laugh when you said you had mellowed over the years. It reminded me of a conversation I had a few years ago with a Catholic priest in Gl…
Replied Feb 28
Ataixa support groups
Hello Kati Thank you much appreciated. I am off to a 'Bling' sale held in aid of Gables Farm, so I will read and inwardly digest when I come home. Andrew is dreading it, he knows I will end up with a…
Replied Feb 28
Carol Gow's Page
Gifts Received (2)
Latest Activity
Profile Information
- Are you a patient, relative, friend, or medical professsional?
- Patient
- What type of ataxia do you have?
- They are srill doing genetic testing so far every test has come back negative, it is thought I have Idiopathic CA
- When were you first diagnosed?
- March 23, 2009
- Have you been formally/medically tested for ataxia?
- Yes
- Is your ataxia progressive?
- Yes
- Is your ataxia hereditary?
- Not Sure
- If hereditary, do other members of your family have ataxia?
- No
- How has ataxia affected your quality of life and ability to work?
- I am retired. Still continue with my Charity work, walking is hard and speech is affected
- What affects your ataxia (food, stress, etc)?
- stress, tiredness.
- What other ataxia support groups do you belong to and would recommend?
- Ataxia U.K.
- How has your family responded to your ataxia?
- It is hard for my husband, but he does very well. My condition has not been announced to other family members, they do not live here.
- What medication or treatments do you find helpful?
- Amytriptyline x 10mg 2 at night, helps sleep and pain. Ibubrofen during the day when needed
- Please share your story with the community...
- A short potted history of me as follows:
I was a civil servant
I am married to Andrew
I am the Chairman of a local Dogs and Cats Home (I intend to keep 'the little grey cells' exercised as long as possible)
I am animal potty
I currently have 3 Dogs and 1 Cat, had 4 of each before losing 1 dog and 3 cats. 2 cats in 3 weeks (just)
I was a craft person before CA - now my dexterity is not so good
I love the garden
I have had various tests from both my specialist and the genetic centre, all have come back negative, my genes are O/k!!. I think the CA ia idiopathic.
I felt as though I was the only person in the world with this condition. Stupid I know.
At the moment I can with difficulty walk, although it is not very good. I keep walking into things, like door frames) I have lost count of the times I have been accused of being drunk. The last time I was a 'bloody alcoholic'
I can't help it but I feel robbed, although I have accepted my lot such as it is.
- Do you have a doctor or hospital you would like to recommend?
- My specialist is Dr. Weatherby at Derriford Hospital
Carol Gow's Photos
Carol Gow's Blog
Make-up
I'm not being sexist but my question is appropriate to the girls, that said the boys are welcome to throw in their two pennuth.
Does anyone have a problem with blusher and eye make-up - what is the secret in getting it right? I find it the devil's own job. I have always had difficulty putting eye make-up on my right eye (long story) but now left and right give me trouble. Blusher on the left hand side I can manage but the right well!!!! I swear the mascara brush is alive!
By the time… Continue
Posted on November 17, 2009 at 7:34am — 5 Comments
THE SAGA CONTINUES
Further to my piece entitled 'embarrassing or what' we have received our new credit cards and details of our new bank account, only to find the credit card does not work and the bank account is not recognised. We have been told to report to the bank tomorrow. Why do I have the feeling of here we go again? Added to which the statement came for the old account, up to and including the date of the fraud, for us to find it includes a transaction we never made.
I have trawled the net and find w… Continue
Posted on November 9, 2009 at 3:42pm — 3 Comments
Scooter
I have got a scooter, it is a great help. I was able to go out with Andrew and the dogs without dragging behind and every movement being agony. When we brought the dogs home Andrew and I (me on the scooter) went to the village. Once there I was able to park up and have a good look round, something I have not done for sometime because when I walk I am tired out by the time we reach it.
It is an 'all terrain' scooter and the lovely thing about it is I can go to the field with the dogs. As lo… Continue
Posted on November 9, 2009 at 11:15am — 5 Comments
Embarrassing or what!
Posted on November 6, 2009 at 4:00pm — 5 Comments
Comment Wall (40 comments)
- At 10:27am on March 9, 2010,
Ironside said…
- Thanks for the welcome. Wish my stay in this community is pleasant. I hope to participate in spite of language difficulties. Best regards. Ironside
Gracias por la bienvenida. Deseo que mi estancia en esta comunidad sea grata. Espero participar a pesar de las dificultades del idioma. Saludos cordiales. Ironside
- At 3:10pm on March 5, 2010,
Alan Scott-Pritchard said…
- Dear Carol
Thank you for anwering so promptly It would be nice if we could all get together somehow
even if it was once a month .I am not a very confident driver and to have to find the various
meeting places in Cornwall I would find it very daunting.I will contact you and come and
see you both kind regards Pauline.
- At 2:41pm on March 3, 2010,
barry fairchild said…
- thanks for the message i'm glad that you are keeping well! I know what you mean about the travelling to the meetings, I went to the meeting at liskard and somehow I found myself volentering to be the treasurer just to get the branch up and running. The next meeting will be at the premier inn, st Austell on Saturday 27 march at 1.30.
address: Treverbyn road, carclaze, St Austell, cornwall pl25 4el. there will be minutes as soon as I receive them I will gladly forward them to you. One of the things that was brought up was the topic of places to meet, it was decided to have the meetings in different places through out cornwall, we are even planning to have a meeting in Plymouth, (place and venue to be looked into).
We except that travelling to the meetings is going to be difficult for some people that is why we want to very the meet places, so as to give people the chance to attend. Everybody is welcome to this friendly and welcoming group.
hope to see you soon, take care regards barry.
- At 2:20pm on January 28, 2010,
Alison said… - I have been following lots of things on this site for along time. I must say you are always a good read and I often think 'thats' what I should have said)... nice to see you so involved, I wish I was! We have a Patterdale/jack russell cross, he's called Alfie.
- At 11:50am on January 18, 2010,
nati cepeda said… - thank u,
i hope i do find some help here.
- At 1:03pm on January 16, 2010, Sarah-Jane Squire gave Carol Gow a gift…
- At 2:05am on January 15, 2010,
Darran Winfield-Stanesby said… - Cheers Carol I am sure I joined a few years ago but have concerntrated on Ataxia UK site when I could, been of the scene for some time and followed a link from one of Alan Thomas emails to me tried to sign in but couldn't hence re-joining.On the above embarrassing situation same happened to me in Tesco but it was a day when I was on my own so 2 yes 2 assistants bagged my weeks shopping and the lady on the till made 3 helping me ( it was a bad day I should have stayed at home but never say never!!) massive queue behind me and yes with all my mys in their arms they had to put it all back for me!!
- At 9:32pm on January 13, 2010,
William Phillips said… - Hi Carol
Just to say thanks for the coffee and chat and thanks to you and Andrew for the offer to mind "Mad Dog Joe" if ever I need it due to going into Hospital etc. Hopefully it wont be needed but it is a worry I now don't have. To anyone else reading this Carol has the bigist smile I've seen since I don't know when and Andrew is very helpfull without hovering (If you know what I mean) - Mwaaaah Bill.
- At 8:59am on January 3, 2010,
hazel collins said…
- thankyou carol good to hear from you x
- At 9:13pm on December 8, 2009,
Susan Q Knittle-Hunter said… - Thank you...
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