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Accessible large screen iPod for Ataxians

Replied Feb 1

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Beer Toast From Alan Thomas

Latest Activity

Ben Munoz and Chanell Warthen are now friends

on Saturday

Ben Munoz left a comment for Chanell Warthen

on Saturday

Ben Munoz updated their profile

on Friday

Ben Munoz gave a gift to Alan Thomas

Beer Toast

From the Gift Store

on Friday

Ben Munoz received a gift from Alan Thomas

Beer Toast

From the Gift Store

on Thursday

Ben Munoz left a comment for Bones

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Profile Information

Are you a patient, relative, friend, or medical professsional?

Friend

What type of ataxia do you have?

None

Have you been formally/medically tested for ataxia?

Not Sure

Is your ataxia progressive?

Not Sure

Is your ataxia hereditary?

Not Sure

If hereditary, do other members of your family have ataxia?

Not Sure

Please share your story with the community...

I'm the founder of LivingWithAtaxia.org, a community of people living with ataxia. Email me at ben@bensfriends.org.

Ben Munoz's Blog

Ataxia Spinocerebellar and Ataxia Telangiectasia Qualify Immediately for U.S. Social Security Disability Benefits

We'd like to pass along some good news for the American members of our community.

The U.S. Social Security Office has JUST added Ataxia Spinocerebellar and Ataxia

… Continue

Posted on February 20, 2010 at 2:00pm —

LivingWithAtaxia.org Featured on About.com

Just this week, About.com featured LivingWithAtaxia.org as a recommended support community for ataxia.

"If you want to know what living with ataxia is like, or want to find other people dealing with ataxia, this site is a great place to start.".

Read the article on About.com.

Cheers to every me… Continue

Posted on August 31, 2009 at 6:21pm — 7 Comments

Welcome to LivingWithAtaxia.org

You Found Us!

Welcome to LivingWithAtaxia.org. We're glad you found us. We're a little corner of the Internet where patients (and friends and family) with all forms of Ataxia can get together to share stories and provide each other with a little support. It's amazing how good it feels to share what's on your mind, and to listen to somebody who needs support.

What is LivingWithAtaxia.org

We believe that no one should ever have to suffer alone. In 2006, I had a rare form of a stro… Continue

Posted on December 6, 2008 at 10:30am — 11 Comments

Comment Wall (33 comments)

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At 10:40am on March 11, 2010, Alan Thomas gave Ben Munoz a gift…: Beer Toast
Beer Toast
From the Gift Store

At 1:59am on March 11, 2010, Bones said…: hey ben, my daughter left home I am now available so just e-mail me and we can get back to business. michael

At 11:48am on March 9, 2010, Ironside said…: I welcome the interesting possibility that this community is multilingualism. There's no rush, take your time because I guess that is not easy. Meanwhile I will continue using the Google translation. :-)
Best regards. Ironside

Celebro la posibilidad de que esta interesante comunidad sea multilingüismo. No hay ninguna prisa, tómese su tiempo porque supongo que no es nada fácil. Mientras tanto seguiré utilizando la traducción de Google. :-)
Saludos cordiales. Ironside

At 10:35am on March 9, 2010, Ironside said…: I'm grateful that my report of the existence of this exciting community. Try to integrate despite language difficulties. Best regards. Ironside

Te agradezco que mi informaras de la existencia de esta interesante comunidad. Intentaré integrarme a pesar de las dificultades del idioma. Saludos cordiales. Ironside

At 1:21pm on March 5, 2010, Alan Thomas said…: New Ataxia UK filmAtaxia UK has a new promotional film coming out soon, made via a Media Trust grant. It will shown on the Community Channel on 5 March at 7.30 am and pm. The Community Channel is on Sky 539 • Virgin TV 233 • Freeview 87

http://www.communitychannel.org/content/view/3465/167/

Radio Interview, on Radio Wales
http://www.bbc.co.uk/iplayer/console/b00r5y5t
46.10 in
(Alan has changed, his name??)

At 12:59pm on March 5, 2010, cathy warner said…: hi ben not very good with computers on community channel online hope this helps if not alan has information plus he has done an interview as well about wheelchair service

At 2:44am on January 19, 2010, Kati said…: semester is like a school/college term? Are you going to college or university?
The snow melted here but apparently we are due for more tomorrow, road into next village is still closed from flooding of previous snow melting! so we can't get far with walks. Cold, foggy and damp today and my chest infection has come back. Winter not my favourite months cos of increase of pain/stiffness too... roll on spring!

At 1:20pm on January 5, 2010, Lorraine Lerner said…: hi Ben,

I want to thank you for this website.

are there any members from Cuba? I have read about SCA2 being prevalent in Cubans.

moilerner

At 2:36am on August 18, 2009, Lit Smith said…: Thank you for the extra bit on Showcase.
I MIGHT get it right next time! ... Lol
Love Lit

At 2:35am on August 10, 2009, Jamie Leigh Hansen said…: Hey Ben. I really love this site. Thank you for all your work setting it up and keeping it going. : )