Ben Munoz Male Austin, TX United States: Share on Facebook

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How to Create Group and Organize A Meetup in Your City
2 Replies

Started this discussion. Last reply by Ben Munoz Dec 18, 2011.

Trouble with the Send Button (or Other Buttons)

Started Aug 13, 2011

How To Make Our Community Easier to Find
3 Replies

Started this discussion. Last reply by Nick Ormsby Jun 28, 2011.

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Gifts Received (2)

Red Ribbon From stevenmc Beer Toast From Alan Thomas

Ben Munoz's Page

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January 2012 Community Newsletter

LivingWithAtaxia Members, Friends and Family,As we begin a brand new year, envigorated with greater joy and compassion, we renewed our greater commitments to our community. BensFriends grew tremendously in the past three years, and we want to take this moment both to thank you and to make a promise to continue fulfill our mission: to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like them.We’re truly privileged to help you make 2012…See More

Blog post by Ben Munoz Jan 26

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Profile Information

Are you a patient, relative, friend, or medical professsional?: Friend

What type of ataxia do you have?: None

Have you been formally/medically tested for ataxia?: Not Sure

Is your ataxia progressive?: Not Sure

Is your ataxia hereditary?: Not Sure

If hereditary, do other members of your family have ataxia?: Not Sure

Please share your story with the community...: I'm the founder of LivingWithAtaxia.org, a community of people living with ataxia. Email me at ben@bensfriends.org.

Ben Munoz's Videos

Stace Webb Riding Recumbent Bike

Added by Ben Munoz

Ben Munoz's Blog

January 2012 Community Newsletter

LivingWithAtaxia Members, Friends and Family,

As we begin a brand new year, envigorated with greater joy and compassion, we renewed our greater commitments to our community. BensFriends grew tremendously in the past three years, and we want to take this moment both to thank you and to make a promise to continue fulfill our mission: to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like…

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Posted on January 26, 2012 at 10:00am

December 2011 Community Newsletter

Ataxia (International) Survivors, Friends and Family,

We hope this message finds you well with high spirits and inner joy. We’re happy to inform you that our Ataxia (International) community continuously been growing. And as always, we’re here to give strength and support.

--------------------------------------------------------------------------------

IN THIS…

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Posted on December 19, 2011 at 5:36pm — 4 Comments

Alan Thomas Featured on Race Online 2010

http://raceonline2012.org/peoples-taskforce/402…

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Posted on April 2, 2010 at 5:10pm

How to Help LivingWithAtaxia.org

This community is all about helping. Helping yourself and helping others. Since many members have asked how they could help,

we put together a list of ways you can help.

How to Help Yourself

Write about your experience in a blog posting.
Ask the community a question in the…

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Posted on March 15, 2010 at 11:30am

Ataxia Spinocerebellar and Ataxia Telangiectasia Qualify Immediately for U.S. Social Security Disability Benefits

We'd like to pass along some good news for the American members of our community.

The U.S. Social Security Office has JUST added Ataxia Spinocerebellar and Ataxia…

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Posted on February 20, 2010 at 2:00pm — 1 Comment

Comment Wall (69 comments)

You need to be a member of Living With Ataxia - Online Support Group to add comments!

Join Living With Ataxia - Online Support Group

At 9:58am on September 2, 2011, joehamed said…: NO ONE SEEMS TO WANT TO CHAT.....WHATS UP...WHATS NEW

At 2:57pm on August 24, 2011, Alan Thomas said…: LOLOL yes I know !

I was uploading a video when I counldnt find the video tab, but commonsense soon explored and found the right place.

welldone keep us informed

me very good

Alan

At 6:42am on August 17, 2011, dougmusical said…: Hi Ben,

Thanks for your interest. I am just getting used to the website, also, thanks for setting all this up in the first place.

Cheers, Doug.

At 6:01am on August 16, 2011, joehamed said…: New to all of this..i am a technophobe...would like to know more and to learn how people are coping...is there any advise on writing and publishing?

At 2:36pm on August 15, 2011, debbyj said…: Thanks Ben for the welcome and concern. So far I haven't had much time to spend with the group so far, but I can see it looming in the future where I will have lots of time on my hands...

At 8:26am on August 13, 2011, elkhot said…: Hi,

I'm an egyptian student ,have 28 years old and have friedreich's ataxia disease.

I regested as a master student at Lund university,Sweden.

I'm in Sweden now.

My program is to study two years ,and I had a scholarship but it was for only ten months but it's finished now.

So, I'm searching for any organization which can help me to complete my study.

Also i want an electric wheelchair from Sweden.

bye,

Elsaid.

At 1:28am on July 15, 2011, amandapoon said…: thanks for wriiting, i am as fine as i can be, it is challeging daily but i am hangine in there, thanks for checking.

amannda

At 8:26pm on July 5, 2011, VerballyVal said…: Hello! Thank you for the warm welcome. I have already "liked" the Ben's page on FB and shared the great YouTube video on FB and Twitter. Thank you for creating this wonderful community!

At 11:48am on June 26, 2011, stevenmc gave Ben Munoz a gift…: Red Ribbon
thank you for being my friend
From the Gift Store

At 4:28pm on June 21, 2011, Jane Stephens said…: Thanks Ben and all of you.. I am a chatter on NAF also. It is really hard for people to accept us as we are. That's why these support groups are so important for us. I had not heard of Ataxia until my neuro told me what it was a couple of years ago.. Then I found all the info I could on my computer. It is not where we want to be but education is the best place to start. My family has been very supportive.