Started this discussion. Last reply by Ben Munoz Dec 18, 2011.
Started Aug 13, 2011
Started this discussion. Last reply by Nick Ormsby Jun 28, 2011.
LivingWithAtaxia Members, Friends and Family,
As we begin a brand new year, envigorated with greater joy and compassion, we renewed our greater commitments to our community. BensFriends grew tremendously in the past three years, and we want to take this moment both to thank you and to make a promise to continue fulfill our mission: to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like…
ContinuePosted on January 26, 2012 at 10:00am
Ataxia (International) Survivors, Friends and Family,
We hope this message finds you well with high spirits and inner joy. We’re happy to inform you that our Ataxia (International) community continuously been growing. And as always, we’re here to give strength and support.
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IN THIS…
Posted on December 19, 2011 at 5:36pm — 4 Comments
Posted on April 2, 2010 at 5:10pm
This community is all about helping. Helping yourself and helping others. Since many members have asked how they could help,
we put together a list of ways you can help.
Posted on March 15, 2010 at 11:30am
Posted on February 20, 2010 at 2:00pm — 1 Comment
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Autism
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Hepatitis C
Lupus
Multiple Myeloma
Myositis
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
© 2012 Created by Ben Munoz.
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LOLOL yes I know !
I was uploading a video when I counldnt find the video tab, but commonsense soon explored and found the right place.
welldone keep us informed
me very good
Alan
Hi Ben,
Thanks for your interest. I am just getting used to the website, also, thanks for setting all this up in the first place.
Cheers, Doug.
Hi,
I'm an egyptian student ,have 28 years old and have friedreich's ataxia disease.
I regested as a master student at Lund university,Sweden.
I'm in Sweden now.
My program is to study two years ,and I had a scholarship but it was for only ten months but it's finished now.
So, I'm searching for any organization which can help me to complete my study.
Also i want an electric wheelchair from Sweden.
bye,
Elsaid.
thanks for wriiting, i am as fine as i can be, it is challeging daily but i am hangine in there, thanks for checking.
amannda
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