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Anna Heikkinen
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Anna Heikkinen's Discussions
One Litre of Tears
1 Reply
If you are ready to shed some tears, watch this: www.mysoju.com/1-litre-of-tears/. It is a Japanese TV-series (and a movie) on the spinocerebellar degeneration.
Started this discussion. Last reply by Deborah Gray Feb 8.
Diplopia
4 Replies
I wonder how "typical" it is to have diplopia (i.e. double vision) as a symptom of ataxia. Anyone here? I always thought it was related to my brain (ex-) tumour, but ataxia... I found this site some…
Started this discussion. Last reply by Shawn Feb 5.
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It is very sad and so familiar. I thank the Lord mine isn't progressing that fast.
Hi......yes I have constant double vision. Prisms in glasses help but the eye muscles eat them up..so hard to tell if my dizziness is from the ataxia or from the double vision.probably a double whammy!
Thanks for the link Anna.......i only wish my…
No. Thanks for the info!!
Hi Anna
Yup I also have sporadic double vision for which London recommended Baclofen. Am on 30mg which does help. Also have nystagmus which makes me look even more attractive! Have you tried Baclofen?
love and light
S-J
I have terrible double-vision and terrible(er) coke bottle glasses! I didn't need glasses for it though, until my symptoms started presenting themselves.
Profile Information
- Are you a patient, relative, friend, or medical professsional?
- Patient
- What type of ataxia do you have?
- cerebellar ataxia
- When were you first diagnosed?
- April 25, 1995
- Have you been formally/medically tested for ataxia?
- No
- Is your ataxia progressive?
- Not Sure
- Is your ataxia hereditary?
- No
- How has ataxia affected your quality of life and ability to work?
- Stopped working.
- What affects your ataxia (food, stress, etc)?
- Stress, fatigue... etc.
- What medication or treatments do you find helpful?
- All kinds of exercise: swimming, yoga, gym.
- Please share your story with the community...
- My ataxia is caused by a brain tumour/surgery.
Anna Heikkinen's Photos
Comment Wall (2 comments)
- At 8:17am on February 1, 2010,
Kati said…
- Hi Anna
Welcome to the group, your little cat looks so cute asleep! I'm not sure regarding the photo's I'll have to ask Ben or Scott as they are the 'tech guys' who put the site together etc.
Re: Ataxia V Dystonia, I'm not sure either. I seen videos on Youtube about Dystonia but the movements seem much more severe and erratic and mine aren't like that. My fingers sometimes 'flex' on their own even when resting and not trying to stiffen them to type with. I find it really makes hands hurt after a while when I been typing with fingers flexed to hit keys, but otherwise my wrists are quite floppy and i cant just keep index finger flexed without whole hand been flexed. Its either stiff or floppy I don't seem to have an inbetween setting.. lol! I'm looking into finger splints that I seen on one lady who uses it to access an ipod with text-to-speech program on, as it may make it easier for me to text on my blackberry storm too.
- At 3:13pm on January 26, 2010,
Carol Gow said…
- Hello Anna
Welcome to LWA. It is friendly and helpful.
Regards
Carol
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