Hi, I'm new to this group. My youngest son (3) has been diagnosed with a possible autosomal recessive ataxia, they believe it is ataxia-telangiectasia (we have an appointment with a geneticist next…Continue
Hi! My daughter has seen two neurologists...one regular the other a pediatric. The regular neuro diagnosed her with ataxia but did know which type or cause so he referred us to the pediatric neuro...…Continue
I posted this on the main board but figured I would repost it here! :-)Hello there, I was wondering if anyone would be able to give me some insight as this is new to me. On Jan. 10th 2014, my son…Continue
I was just diagnosed with SCA in 2014, but Im already to the point.... My wife hired a home health aid because of my balance... We are moving to Lake City, Florida....
Does anyone know how to get her approved so Department of Human services… Continue