Hi, I'm new to this group. My youngest son (3) has been diagnosed with a possible autosomal recessive ataxia, they believe it is ataxia-telangiectasia (we have an appointment with a geneticist next…Continue
Hi! My daughter has seen two neurologists...one regular the other a pediatric. The regular neuro diagnosed her with ataxia but did know which type or cause so he referred us to the pediatric neuro...…Continue
I posted this on the main board but figured I would repost it here! :-)Hello there, I was wondering if anyone would be able to give me some insight as this is new to me. On Jan. 10th 2014, my son…Continue
I'm dealing with it. It runs in the family so I'm familiar. But I still have lots of questions.
Are there any modern treatments that help? I'm trying Chinese medical herbs, but I've only been taking it a week.
How do I tell my kids?… Continue
I joined this site weeks ago...but I am painfully shy and insecure when it comes to seeking out support and help. It took a bit of effort to even set up my profile...I think its because in my head I told myself that if I start becoming active on…