treatment for ataxia

Replies to This Discussion

Permalink Reply by Michael Ward on February 11, 2012 at 11:40am

Patsy I may come off as being sensible 24/7 however in fact I'm not.

In general I'm a big goof off and joke around most of the day.

I am extremely blessed and surrounded by a loving family.

It's like summer year round here in Southern California.

Despite having ATAXIA I'm happy!

Kind regards,

michael

• ▶ Reply

Permalink Reply by Patsy on February 11, 2012 at 11:49am

Now I'm jealous lol - It's been minus seven here today. Ipswich  UK 

• ▶ Reply

Permalink Reply by Michael Ward on February 11, 2012 at 12:28pm

Hi Pasty:

On my mothers side they came to the states in the 1700's from England.

My Dads side is from Ireland and they came over during the Potato Famine.

In 1855 or so my great great grand father headed West during the Gold Rush.

I ended up being born in Los Angeles and grew up in Huntington Beach near the Ocean.

Actually I'm so lucky to have experienced life in an amazing way having traveled extensively to boot.

At least I have late onset ATAXIA. I have compassion to those who developed the disease earlier on in life.

One thing we all have in common is the need to live the best we can with what we have been dealt!

It's colder today (65F) than yesterday (72F)  however it's very clear and sunny and no wind..

Should be a nice day!

• ▶ Reply

ModeratorPermalink Reply by Alan Thomas on February 11, 2012 at 12:46pm

Yes its very cold (but dry) in Wales

Yes California is warm (although, when I was there last March, for NAF) it was cold and WET ! (hope its warm in San Antonio, for NAF conf. this  year).

 

I take Cipralex (escitalopram) 10mg once every am  (I went to the GP with stomach pains, when he prescribed these - but it worked)

It doesnt  seem to result in any direct effect on my CA, but obviously  it  must have some effect "somehow"

 

I take a sleeping tablet (Zolpidem)

vitamin B compound

Azilect (rasagaline) prescrbed for a intension temor (my Neurologist said I had ! I hadnt noticed

• ▶ Reply

Permalink Reply by Patsy on February 11, 2012 at 1:03pm

Why do auto spell checks make me Pasty lol

27f at the moment [7pm]

I take naproxen for muscle pain - now and then I think they are unnecessary and cut them down to one a day but then I start to noticed the aching muscles.  I also take omeprozel to protect stomach!

I also take half tablet of baclofen in late afternoon.  It amazes me how effective this half of a tiny tablet gives so much relief.

I'll stop there or the list will be endless !

Patsy

• ▶ Reply

Permalink Reply by Michael Ward on February 11, 2012 at 2:54pm

Zolpidem is one of the better sleep aids I have taken.

I ran out of them last month.

Need to get some more.

When I am well rested I do better.

Thanks Allan for jogging my memory!

Alan Thomas said:

Yes its very cold (but dry) in Wales

Yes California is warm (although, when I was there last March, for NAF) it was cold and WET ! (hope its warm in San Antonio, for NAF conf. this  year).

 

I take Cipralex (escitalopram) 10mg once every am  (I went to the GP with stomach pains, when he prescribed these - but it worked)

It doesnt  seem to result in any direct effect on my CA, but obviously  it  must have some effect "somehow"

 

I take a sleeping tablet (Zolpidem)

vitamin B compound

Azilect (rasagaline) prescrbed for a intension temor (my Neurologist said I had ! I hadnt noticed

• ▶ Reply

Permalink Reply by Marie Turner on February 11, 2012 at 3:11pm

Luckily although I take just vitamins and citalopram after a life time of suffering from stress related illnesses I am not in any pain,I don't have problems with sleep,I am generally happy but i do get frustrated when I can't lean down and get things anymore.Ironically I am better than at any other time in my life health wise.I just have pure ataxia with speech and mobility problems. I also have intention tremor but apart from carrying liquids it doesn;t bother me yet. It's cold here as well.Too cold to go outside even though it looks so nice.

Marie

• ▶ Reply

Permalink Reply by Marie Turner on February 11, 2012 at 3:30pm

Exciting discoveries here in england about  stem cells but no mention of the Cerebellum!!Watched a prog where stem cells were used to help with sight but I am still wary of quacksand thy may have found a cure for alzheimers.But it could just be the media.

• ▶ Reply

Permalink Reply by nfb on February 14, 2012 at 9:29am

Hi all

You might remember me from last summer asking about my 18 yr old with CA who wnated to skateboard. Your advice was great, and he did buy it, use it, fall off sometimes. I can hardly watch, but that is a mother's perspective. So, thanks again for the encouragement.

His latest problem is the tremour in his hands. He is a visual artist, studying fine arts at college and is just now boming very sad, discouraged sensing a loss of control. His teachers have always commented on his unusual line, makes his work stand out. But he is now panicking. Is there something that can help with the tremours? He will not be able to see the neurologist for a few months.

Any advice is welcome.

See his work here: http://samkasirer.tumblr.com/artwork

• ▶ Reply

▶ Reply to Discussion

• ‹ Previous
• 1
• 2
• Next ›
• Page