treatment for ataxia

Replies to This Discussion

Permalink Reply by Michel Beaudet on February 9, 2012 at 7:48pm

chantix is not an antidepressant but a drug to help stop smoking. It has many side effects, helps in few cases and only minimally. See at the end of p.5 @ http://www.curefa.org/_pdf/newsletter-dec-2010.pdf

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Permalink Reply by Marie Turner on February 10, 2012 at 4:15am

I am on Citalopram which is an anti depressant.Haven't noticed any difference with the ataxia .I know my doctor tried a variety of things.I  have reduced by 10mg.All anti depressants dull the sexual appetite but that may be my age -52 but feel failry cheerful even though in the past I suffered with depression. Now i have really got something to worry  about but I don't so for me the citalopram makes me not worry about it so much.Would be interested to see if it works even a fracture.

Marie

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Permalink Reply by Michael Ward on February 10, 2012 at 8:01am

Hi Stephanie:

I have tried different drug treatments and they all gave me horrible side effects.

We can get desperate and try and find some magic pill.

However Anti Depressants like ZOLOFT, PROZAC made me depressed so they were counter productive.

Sleeping Medication made me sleep walk. (Fell hard while sleep walking)

If I have something really important I might take some NUGIVAL. Major energy booth. However I have had one bottle for One year now and have only used half of it. The pills are 250MG (TOO Powerful). I cut them into 4's 62.5MG. They work great when you need them. However the crash after is intense. It takes a day of recovery for me so I take it about once a month. Only when I have to be around lots of people and have interaction that requires me to act as if nothing is wrong with me.

I still work so its major maintenance for me.

I find that a more natural program works best for me.

COQ10 100MG 2 x per day (Bio-available),

OMEGA 3,

B COMPLEX

I dose my water bottle with VITAMIN C POWER 1000MG.

NO FAST FOOD,

Eat Healthy.

Move as much as you can.

The more I move the better I do.

Being lazy makes us worse.

I know you asked about CHANTIX and I went off on a tangent.

Kind regards,

michael

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Permalink Reply by Patsy on February 10, 2012 at 8:47am

Being lazy makes us worse really rings true with me!!  It can sometimes be quite difficult when out of energy to give yourself that extra push - especially if you have someone else willing to take care of you!

Patsy

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Permalink Reply by Michael Ward on February 10, 2012 at 9:45am

Patsy: My wife acts as if I'm fine. I get no special treatment. If I make desert I better make it for the whole family and not just for myself. There are times I wish others would take care of me. However by giving me no special treatment keeps me active. The more we do for ourselves acts like a treatment. If you have someone care for you that's a nice luxury for sure.

In my case it's sink or swim!

Kind regards,

michael

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Permalink Reply by Patsy on February 10, 2012 at 9:53am

Yes, it's a difficult balance - I dont want Ken to do everything for me but when we are out, I need him to discreetly help me to get from a to b and I REALLY DO need him to drop me off before finding a parking space.

...and if we are out shopping, I do need 'parking' on a seat before he goes in the gents.

etc

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Permalink Reply by amyjane on February 11, 2012 at 2:30am

I would add Carnitine to the above recommendation. I started the "mito cocktail" 3 years ago during my last major episode and I was healthy for 3 years. I take pure B2, L-Carnitine, and Ubiquinol (CytoQ Max by Solace Nutrition). 

Michael Ward said:

Hi Stephanie:

I have tried different drug treatments and they all gave me horrible side effects.

We can get desperate and try and find some magic pill.

However Anti Depressants like ZOLOFT, PROZAC made me depressed so they were counter productive.

Sleeping Medication made me sleep walk. (Fell hard while sleep walking)

If I have something really important I might take some NUGIVAL. Major energy booth. However I have had one bottle for One year now and have only used half of it. The pills are 250MG (TOO Powerful). I cut them into 4's 62.5MG. They work great when you need them. However the crash after is intense. It takes a day of recovery for me so I take it about once a month. Only when I have to be around lots of people and have interaction that requires me to act as if nothing is wrong with me.

I still work so its major maintenance for me.

I find that a more natural program works best for me.

COQ10 100MG 2 x per day (Bio-available),

OMEGA 3,

B COMPLEX

I dose my water bottle with VITAMIN C POWER 1000MG.

NO FAST FOOD,

Eat Healthy.

Move as much as you can.

The more I move the better I do.

Being lazy makes us worse.

I know you asked about CHANTIX and I went off on a tangent.

Kind regards,

michael

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Permalink Reply by Michael Ward on February 11, 2012 at 6:00am

amyjane: I like your program. My COQ10 is Ubiquinol as well. B2, B6, B12 in a pure liquid form with a dropper is how I take it. I will look into the L-Carmitine.

Thank you for the imput.

Kind regards,

michael

amyjane said:

I would add Carnitine to the above recommendation. I started the "mito cocktail" 3 years ago during my last major episode and I was healthy for 3 years. I take pure B2, L-Carnitine, and Ubiquinol (CytoQ Max by Solace Nutrition). 

Michael Ward said:

Hi Stephanie:

I have tried different drug treatments and they all gave me horrible side effects.

We can get desperate and try and find some magic pill.

However Anti Depressants like ZOLOFT, PROZAC made me depressed so they were counter productive.

Sleeping Medication made me sleep walk. (Fell hard while sleep walking)

If I have something really important I might take some NUGIVAL. Major energy booth. However I have had one bottle for One year now and have only used half of it. The pills are 250MG (TOO Powerful). I cut them into 4's 62.5MG. They work great when you need them. However the crash after is intense. It takes a day of recovery for me so I take it about once a month. Only when I have to be around lots of people and have interaction that requires me to act as if nothing is wrong with me.

I still work so its major maintenance for me.

I find that a more natural program works best for me.

COQ10 100MG 2 x per day (Bio-available),

OMEGA 3,

B COMPLEX

I dose my water bottle with VITAMIN C POWER 1000MG.

NO FAST FOOD,

Eat Healthy.

Move as much as you can.

The more I move the better I do.

Being lazy makes us worse.

I know you asked about CHANTIX and I went off on a tangent.

Kind regards,

michael

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Permalink Reply by Michael Ward on February 11, 2012 at 6:04am

Triple Strength Pharmaceutical Grade L-Carnitine Citrus Flavor Vegetarian Formula NOW L-Carnitine Liquid provides all of the extensive benefits of Carnitine in a highly absorbable liquid form. L-Carnitine is a non-essential amino acid that helps to maintain overall good health by facilitating the transfer of fatty acid groups into the mitochondrial membrane for cellular energy production. * It naturally occurs in red meat and other animal-source foods, but we recommend supplementation to obtain optimal levels of this excellent amino acid. NOW L-Carnitine is vegetarian (non-animal sourced) and Pharmaceutical Grade (USP).

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Permalink Reply by Marie Turner on February 11, 2012 at 7:01am

But apart from improving our over all health is there anything specific to ataxia symptoms>Are we not clutching at straws?i would love  to know if there is anything which will help me walk properly again.The debate is good because we can say what has helped us but we are all different and different diagnoses.Whhat caused our cerebelllar degeneration  is irrelevant .Most of us want to know what we can do> I feel powerless sometiimes.I want to take action now . I don't like taking anything which might destroy the thinking part of my brain as it seems to be unaffected so far.I like the above becuase it explins things scientfiicallly.

Marie

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Permalink Reply by Michael Ward on February 11, 2012 at 9:48am

Can the Cerebellum be repaired?

Can the Shrinkage be stopped?

Can the Damage be reversed?

Because we are compromised the healthier we live the better we do.

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Permalink Reply by Patsy on February 11, 2012 at 11:04am

Very difficult to be true to oneself in that sense Michael - I heard news item last week - one of the top 5 regrets when dying is not allowing oneself to be happy.

It's often difficult to allow oneself to be happy when you are being 'sensible' 24/7

Patsy

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