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Hi Ive had Ataxia for 38 years now I'm on no medication but find it increasly difficult to relax or sleep. I find I am also on the go. Does anybody else have this problem?
Replies to This Discussion
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Permalink Reply by josh greeno on -
i listen to soft music like liquid mind. it calms me down, and it also helps with bad dreams so i do sleep but im still always tired.
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Permalink Reply by Sarah Lacey on -
I can recommend Sleep by June Whittle available from Amazon best cd I have found hope this helps
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Permalink Reply by jason conrad jones on -
hi sarah i am quite the oppsite i find that i spend most of my time in bed iam very letargicjust generally errrrrrrrrrrr i am on fortisips for extra calories as i also have muscle wastage take care and god bless
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Permalink Reply by April Austen on -
Hi, how old were you when your ataxia started? I am a mum of a daughter with spino cerebellar ataxi. She is 13 but we noticed the problems when she was just 11 months. She didn't start to walk until she was 23 months and was always very wobbly and fell lots and that never improved.
I haven't been in touch with anyone who had this condition from so young. If you don't mind, would you tell me a little about yourself.
i am trying to support her as best I can but she gets so upset bless her. She is also Autistc.
I look forward to hearing from you if you are happy to.
April
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