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Permalink Reply by Glenn ter Borg on September 7, 2009 at 7:03pm

Excellent topic! I enjoy seeing other Ataxians flushing out their emotions in creativty.

I am an artist, working in various different mediums, depending on the mood. Animation, video production, music, illustration.

Here are some examples:

Music
http://www.youtube.com/watch?v=a_shFJMQRr8
http://www.youtube.com/watch?v=wfqQ2r3QoHE

Animation
http://www.youtube.com/watch?v=TdIEHj5jkr0
http://www.youtube.com/watch?v=D2JIYs9LPyE

Videos (these are documentaries that I'm working on, highlighting various Ataxians)
http://www.youtube.com/watch?v=AnV-bBC1TK8
http://www.youtube.com/watch?v=66zvuNhOp3k
http://www.youtube.com/watch?v=iiG2zPe0LZE

Illustration
http://here4awhile.shawwebspace.ca/pages/

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Permalink Reply by Lit Smith on September 8, 2009 at 2:38am

I had to post a quick reply ...

I only had time to look at some ... will definitely look properly later ...

You are a star! Not sure how the hell you fit it all in, but VERY talented!

Love Lit

Glenn ter Borg said:

Excellent topic! I enjoy seeing other Ataxians flushing out their emotions in creativty.

I am an artist, working in various different mediums, depending on the mood. Animation, video production, music, illustration.

Here are some examples:

Music
http://www.youtube.com/watch?v=a_shFJMQRr8
http://www.youtube.com/watch?v=wfqQ2r3QoHE

Animation
http://www.youtube.com/watch?v=TdIEHj5jkr0
http://www.youtube.com/watch?v=D2JIYs9LPyE

Videos (these are documentaries that I'm working on, highlighting various Ataxians)
http://www.youtube.com/watch?v=AnV-bBC1TK8
http://www.youtube.com/watch?v=66zvuNhOp3k
http://www.youtube.com/watch?v=iiG2zPe0LZE

Illustration
http://here4awhile.shawwebspace.ca/pages/

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Permalink Reply by Lit Smith on September 8, 2009 at 5:26am

Had a closer look. Especially like the music and videos.

Keep up the good work!

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Permalink Reply by Lit Smith on September 8, 2009 at 11:59am

Hello Bill

That is great ... now you have pointed it out I can definitely see that too.

It does not really matter what you think they are ... all in the eye of the beholder ... but it is a female torso!
Look for the shoulder top left, tummy button bottom right?

The first two are just irregular sort of bowls.The top one has impressions from ferns and bluebell flowers. The bottom two have starfish and shell impressions. I use oxide for the blue and wash off the surplus, and use a tiny bit of clear glaze.

She will be 'Africa' from now on!

Lit x

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Permalink Reply by William Phillips on September 8, 2009 at 7:46pm

Hi Lit.
Yes,I did notice the detail - Ferns, flowers, starfish & shells. Then I looked at the over-all shapes & saw Africa.
I then saw the Torso (after I posted the comment) from the "erm" breasts.
Hard to observe from a photo as the 3d is lost but I know what you mean by "eye of the beholder"
About 30 years ago a friend had a pile of petrified wood in his yard to sell to a tropical fish dealer.
I noticed a piece (About just over a foot high) which to me looked like phoenix rising out of a fire.
He gave it to me and I painted it in a slightly surreal way and ended up giving it to my mum.
She "saw" what I saw and used it for many years as a door stop and some people saw "Phoenix",some didn't.
My mum died and I got "Phoenix" back. Even now some people see "Phoenix", some don't.
I may take a photo and see what it looks like. LOL Bill xx

Lit Smith said:

Hello Bill

That is great ... now you have pointed it out I can definitely see that too.

It does not really matter what you think they are ... all in the eye of the beholder ... but it is a female torso!
Look for the shoulder top left, tummy button bottom right?

The first two are just irregular sort of bowls.The top one has impressions from ferns and bluebell flowers. The bottom two have starfish and shell impressions. I use oxide for the blue and wash off the surplus, and use a tiny bit of clear glaze.

She will be 'Africa' from now on!

Lit x

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Permalink Reply by Glenn ter Borg on September 8, 2009 at 11:36pm

Thanks Lit! Yes, the time is difficult to manage as the ataxia progresses...but I find that when I adapt to my limitations, my style drastically evolves. My illustrations once had very steady lines, until my hands became unreliable. So I began 'tracing' my characters in Adobe Illustrator, and the lines were perfect. Too perfect. Sterile. So next I began exaggerating random waviness in the lines, and people desribed my drawings as having a melting appearance.

Adapting to Ataxia invites some unpredictable, but not always bad, results.

Lit Smith said:

Had a closer look. Especially like the music and videos.

Keep up the good work!

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Permalink Reply by Lit Smith on September 9, 2009 at 1:32am

Hello Bill

Lol ... funny ... very nicely put. I thought they would help, but I didn't know how to describe them!

Now the Phoenix I want to see. When you have a minute please try to post it.

Lit x

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Permalink Reply by Stefani B on September 16, 2009 at 4:07pm

As a musician, I have always been drawn to healing through music. Having 2 children with chronic illness (one is a life-threatening illness), I have become friends with many individuals who share a journey much like mine. We may have different diagnoses, but we all are battling disease. I found that there wasn't much out there that I could relate to musically. One day I was sitting with my friend Mark and we were talking about how difficult this journey is and how there's a great need for people to have something to hang on to...to relate to....to heal through.....and Project: Cure was born.

We opened up the idea to musicians all over the US. They submitted songs that were along the lines of hope, courage, strength...and we then went through them one by one and picked the top 13.

May 15, 2009 we released Project: Cure. ALL of the proceeds benefit the National Ataxia Foundation, the United Mitochondrial Disease Foundation, and the Immune Deficiency Foundation.

The project is aimed at raising awareness and money for these causes as well as providing support for those battling disease or chronic illness. Our tag line is: Fighting for a Cure through Music

This is a link to a montage I made with the single for the CD (a song I wrote) - I hope that some of you can relate to this in some way or another and find some healing through it.


One More Day (not sure if this link works, so I'll try just a basic one)

http://www.onetruemedia.com/shared?p=8ae8f8354739f53a8dff69&ski...

Here is a link to the website: www.projectcuremusic.org
if you are interested in purchasing it!

My goal is to provide hope...because with HOPE anything is possible (C. Reeve)

Blessings
Stefani

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Permalink Reply by Bones on September 17, 2009 at 2:02pm

yesterday was the past tomorrow is the furture and today is a gift and thats why the call it the present!

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Permalink Reply by Scott Orn on September 24, 2009 at 12:54am

Colleen, can I post this piece on my personal blog? www.kennykellogg.com

I found it beautiful and want to share with my friends.

Colleen Ann Gardiner said:

Oh Goody, what fun. Well done.I find it is so important to have positives as well as the mainstay of routine as with anyone. I tend to write if I am too tetchy to draw or sew as they take so much effort and hand control . Writing often calms me as I can say on paper what I can not in life some I show most I do not. I can't have my family knowing just how loopy I am. I put a poem on before it's under "A butterfly is born" .

When the moons return.

When the moons return in summer I know I will be free,
When the moons return in summer I know I will be me.
For when they left they took a part of me that has no name.
A feeling,a need,a growing a presence, something I can't explain.

Like the sun upon your skin, the wind blowing in your hair
I know by it's very absence that part of me's not there.
The tears they fall so often sometimes soft upon my cheek.
Sometimes harsh and sometimes silent sometimes even in my sleep.

I cannot make my body obey my mind's commands
I cannot feel the water as it runs across my hands
but I feel oh much to strongly this saddness in my heart ,
and all the anger in the world when my body fails to start


Though most things I take within my stride fustration tends to grow ,
when I cannot do the simple tasks my brain should really know.
Unsteady in my walking I plan each step with care ,
but the crulest blow in all of this is when I hold you your'e not there.

I watch my arms around you I feel as they connect,
I see the smile upon your face the sound that your'e content.
My darling I can't feel you there is nobody there,
for in my mind despite what I see I am holding fizzing air.

I pray it will get better that the fog will go away.
That I will just remember how to run and jump someday.
When the moods return in summer I know I will be free
for when the moons are back not blue but white I know they will bring me.

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Permalink Reply by Diane Hauwa Meadows on October 17, 2009 at 4:43am

VIRTUALATAXIA

As Jason has mentioned Virtualataxia i thought i would show my poem, it can be
found on Ataxia uk site. Under help and support- virtual branch.

Virtualataxia is the place to be
enter here and you will see.
Some post for you to read
answer if you please.
You're not here to be judged
just be yourself it's a must.
Lots of things to talk about
not just Ataxia i hear you shout.
This is your world, one to be liked
getting to know people far and wide.
Use this site for what it can be
you may make a friend internationally.
So post on here whatever it may be
replies maybe 1,2 or 3,
they will help lift your spirits, you'll see.
Don't forget Virtualataxia Chat
the more the merrier that's a fact.
Virtualataxia Facebook too
created especially for you.

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Permalink Reply by William Phillips on October 17, 2009 at 5:35pm

I don't know much about poetry but I know what I like - Top rate poem to my mind Diane. BILL xx

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