Living with Ataxia

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This is the place to share any creative projects you've been working on - drawings, paintings, cards, photos, recipes, poems. Post a link or a picture for our other members to see what you've been up to.

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Tags: creative, hobbies, projects

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Hi everyone,
My work is on FACEBOOK. The paintings are oil and acrylics. Unfortunately, my work has slowed down due to the ataxia, but I'm still at it. the paintings can be seen at: http://www.facebook.com/album.php?aid=97035&id=505661569&re...
Be well, Al

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Thanks to all

great new section
Does it include "digital Stories" ??

Alan
Ataxia South Wales
member of the Wales Neurological Alliance

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They are brilliant!

I LOVE the blue tiger

Love Lit

Albert Vergona said:
Hi everyone,
My work is on FACEBOOK. The paintings are oil and acrylics. Unfortunately, my work has slowed down due to the ataxia, but I'm still at it. the paintings can be seen at: http://www.facebook.com/album.php?aid=97035&id=505661569&re...
Be well, Al

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Hi Albert,

I really like your landscapes that are on page 2 of the Facebook page. those are really cool.

Cheers,

Scott

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I love writing Poetry....please let me know what you think and be as objective as you can. Much appreciated ;)

These Days and These Moments......

I cannot explain my feelings right now, frustrating this I find
One minute we are together, the next you feel you are lagging behind
Doesnt matter who I would be with, these days and moments would exist
I want you to know that it isnt you, I say the wrong things and could eat my fist
I hear the immortal "dont do this!" from your lips, I do not understand
Why for do you say these words???, I want you to know this day and moment isnt planned
Moments like this I am in familiar territory, when left to my own devices - Content
I know not where I am, land of the unknown almost and any emotion i had was lent
For your sake, I try so hard for this not to happen - It happens anyhow
I ask you to let me in, promise that I will not hurt you knowingly and only this allow
It must be hard for you when on these days, I apprecciate
It is I that is the one - My lack of feeling at times I think I dictate
This is merely a knee jerk reaction to your response, to my day and my moment
Problems exist which I cannot put into words, choose to play perhaps ever the ignorant
Whilst I am finding my feet and accepting myself
Please dont ever feel that I am leaving you on a shelf
During these days and these moments leave me be, no texts or calls are required
I will be conscious you are not around, rest assured. Your insecurities at this moment go undesired
I will come back, just leave me be
Let me deal with me - Just being me

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Like I told you, I do not really know that much about poetry, but both these are really heartfelt and touching.

I wish I had a way with words and it is obviously very therapeutic for you both.

Well done and look forward to the next installment.

Love Lit


Tina Cox said:
I love writing Poetry....please let me know what you think and be as objective as you can. Much appreciated ;)

These Days and These Moments......

I cannot explain my feelings right now, frustrating this I find
One minute we are together, the next you feel you are lagging behind
Doesnt matter who I would be with, these days and moments would exist
I want you to know that it isnt you, I say the wrong things and could eat my fist
I hear the immortal "dont do this!" from your lips, I do not understand
Why for do you say these words???, I want you to know this day and moment isnt planned
Moments like this I am in familiar territory, when left to my own devices - Content
I know not where I am, land of the unknown almost and any emotion i had was lent
For your sake, I try so hard for this not to happen - It happens anyhow
I ask you to let me in, promise that I will not hurt you knowingly and only this allow
It must be hard for you when on these days, I apprecciate
It is I that is the one - My lack of feeling at times I think I dictate
This is merely a knee jerk reaction to your response, to my day and my moment
Problems exist which I cannot put into words, choose to play perhaps ever the ignorant
Whilst I am finding my feet and accepting myself
Please dont ever feel that I am leaving you on a shelf
During these days and these moments leave me be, no texts or calls are required
I will be conscious you are not around, rest assured. Your insecurities at this moment go undesired
I will come back, just leave me be
Let me deal with me - Just being me

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wow, these are all good, I didn't relaise what a talented bunch we are! :o)

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Ode of Moses

Years mount years
As I tread ahead of scores of my kinsmen
Apparently aimlessly across
This sun-strewn wasteland
Meanwhile we bake with the ground
'Til it seems as though
The sand would fuse to glass
Through this desert that seems endless we trek
With myself in the lead
Heading towards a land which my God has promised us
While debauchery and blesphemy is rampant
Through the masses of unwashed and weary exiles
Which we are composed of
I struggle to keep order and obeisance
To the one who leads me forward
Pulling with me my would-be mendicant kinsfolk
Through a landscape that tries its best
To imitate Hades
I just hope it is not me who is errantly being lead astray
But this I strongly doubt
Meanwhile we subsist on the meager portions
That are offered by this desolate landscape
For even I am being led
While I lead my kinsmen
Through this nightmare landscape

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I think this is a great poem!

Lit Smith said:
Like I told you, I do not really know that much about poetry, but both these are really heartfelt and touching.

I wish I had a way with words and it is obviously very therapeutic for you both.

Well done and look forward to the next installment.

Love Lit


Tina Cox said:
I love writing Poetry....please let me know what you think and be as objective as you can. Much appreciated ;)

These Days and These Moments......

I cannot explain my feelings right now, frustrating this I find
One minute we are together, the next you feel you are lagging behind
Doesnt matter who I would be with, these days and moments would exist
I want you to know that it isnt you, I say the wrong things and could eat my fist
I hear the immortal "dont do this!" from your lips, I do not understand
Why for do you say these words???, I want you to know this day and moment isnt planned
Moments like this I am in familiar territory, when left to my own devices - Content
I know not where I am, land of the unknown almost and any emotion i had was lent
For your sake, I try so hard for this not to happen - It happens anyhow
I ask you to let me in, promise that I will not hurt you knowingly and only this allow
It must be hard for you when on these days, I apprecciate
It is I that is the one - My lack of feeling at times I think I dictate
This is merely a knee jerk reaction to your response, to my day and my moment
Problems exist which I cannot put into words, choose to play perhaps ever the ignorant
Whilst I am finding my feet and accepting myself
Please dont ever feel that I am leaving you on a shelf
During these days and these moments leave me be, no texts or calls are required
I will be conscious you are not around, rest assured. Your insecurities at this moment go undesired
I will come back, just leave me be
Let me deal with me - Just being me

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I have been trying out some other ideas with my clay.
Has any one else been up to anything creative?
Love Lit

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I love your clay work they are really good!

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Thank you.

I can ALMOST guess how they will come out! Some can be really disappointing though.

Have you managed to do any more painting recently?

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