General (1,026)
| Discussions | Replies | Latest Activity |
|---|---|---|
 Have you face discrimination after diagnosed with ataxia?This is a question deep down in my heart. Unfortunately I got such kind of "friends". When I was suspected with ataxia, I was shocked and a… Started by Charmaine |
0 | 1 hour ago |
 Have you had genetic testing for ataxia done?I'm just curious about those of you who have had the genetic testing for ataxia done... What made your doctor decide to do a genetic test?… Started by MissCake2 |
50 |
1 hour ago Reply by Charmaine |
 It Helps to Hear Peoples AdviceI am 51 with Ataxia that is getting worse with age. It helps so much to hear other people's stories. I Thank all of you for sharing. I was… Started by Lori |
7 |
1 hour ago Reply by Kati |
 Requesting informationI was diagnosed with ATAXIA (SCA) in January. I am facing many limitations, like miobility and loss of balance, falling down and hitting m… Started by fc |
12 |
15 hours ago Reply by Jeannie Ball |
Just wanted to share my experience with the rest of you...My family and I went camping this last weekend. I hadn't been camping in over three years. I was very nervous about the whole thing. Wh… Started by MissCake2 |
3 |
on Saturday Reply by Kay |
Exercise EquipmentHas anyone tried the Whole Body Vibration Therapy? What are the benefits of this machine? Started by Faye Mays |
2 |
on Friday Reply by rose |
 UCLA Doctors Appointment May 24, 2011Hi Tim: My appointment was really informative. The Doctors were amazed by how much improvement I have made since our last meeting in Janu… Started by Michael Ward |
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on Thursday Reply by Michael Ward |
Looking for others with gluten ataxia or problems with vestibular balance and vertigo.I am new to this site, and just found it today. I am also newly diagnosed with gluten ataxia. My biggest issue has been learning to live… Started by MissCake2 |
81 |
on Thursday Reply by Lori |
 Kati's Page on Toby Churchill WebsiteMy story got featured this month on Toby Churchill Website about my Lightwriter (they make them) http://www.toby-churchill.com/en/owners/ka… Started by Kati |
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May 20 Reply by Jon |
 early stages ataxiaDear all, About 1,5 years ago I've been diagnosed with ataxia - probably SCA14. I'm 38 years old now. My major symptoms are fatigue, mild b… Started by Cristel Aarts |
15 |
May 20 Reply by Jon |
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Blog Posts
Something I never thought I’d say!!
Posted by John "JC" Colyer on May 27, 2012 at 8:45am 1 Comment 0 Likes
Something I never thought I’d say!!
Having a disability has different dimensions of struggle:
1. physical
2. Emotional/ Mental
3. Everything else!
Its most times…
Meet Sam Bridgman
Posted by Armando Abrero on May 27, 2012 at 8:10am 0 Comments 0 Likes
Meet Sam Bridgman, a 21 year-old junior finance major at University of Portland. He is a native of Seattle, where he grew up like any sports loving boy but more partial with baseball and basketball until he started showing signs of being ill. At…
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Ataxia Friends
Posted by Marty on May 27, 2012 at 7:58am 1 Comment 0 Likes
I would like to say a big Salamat(Thank You),to all the filipino friends who help out on this online group.My wife is a filipina,and i know that to be a good carer takes total dedication.It can be difficult sometimes for the carers,friends and…
Continue Feeling Complete Despite Ataxia
Posted by Armando Abrero on May 27, 2012 at 2:35am 0 Comments 0 Likes
Be prepared for some heart warming.
Sam Bridgman shares how the feeling of love makes him complete while coping with Friedrich Ataxia. Click on link below to watch the…
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