Living With Ataxia - Online Support Group

Forum Discussions (954)

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Kati

'WiiHab' for preserving Motor Skills

I have had my Wii for a while now and it has been a great help in motivating me to do physio exercises (stretching),  balance exercises and…

Started by Kati in GeneralLatest Reply

Ben Munoz

How To Make Our Community Easier to Find

A member of our sister site http://www.ChiariSupport.org posted a tutorial on how to make our community easier to find on the internet by l…

Started by Ben Munoz in GeneralLatest Reply

Kati

Kati's Page on Toby Churchill Website

My story got featured this month on Toby Churchill Website about my Lightwriter (they make them) http://www.toby-churchill.com/en/owners/ka

Started by Kati in GeneralLatest Reply

Discussions Replies Latest Activity
Patsy

CEREBELLAR ATAXIA 'CA' diagnosis with no known cause

Hi - just wondering how many of us have CA with no known cause. Personally I havent needed to give up work as I retired at 60 and therefor…

Started by Patsy in General

17 21 hours ago
Reply by Patsy
Stephanie

treatment for ataxia

Does Chantix (antidepressant used to improve ataxia symptoms) really work?  Should I talk with my neurologist about using this drug?

Started by Stephanie in General

20 yesterday
Reply by Marie Turner
Alan Thomas

Guest post] Ataxia – a Rare Disease Day Post

Guest post] Ataxia – a Rare Disease Day Post http://jayfaulkner.com/blog/archives/487

Started by Alan Thomas in General

0 on Saturday
Alan Thomas

****Welcome to the NEURODEM Cymru Website ****

Welcome to the NEURODEM Cymru Website   http://www.neurodemcymru.org/index.php.en?menu=0&catid=0

Started by Alan Thomas in General

0 on Saturday
tbill

Symptoms

I'm actually on this site to try and get som ehelp for my brother.  He has had ataxia now for 14 years.  He is completely wheelchair bound…

Started by tbill in Recommend a Doctor, Therapist, or Clinic (Positive Review Only)

7 on Friday
Reply by Kati
Nicolee

"I don't know what is wrong or what to do" .. Reassuring!!

The quote is from my neurologist! I saw him Monday and was hoping for a diagnosis and was very disappointed with the knowledge that he is a…

Started by Nicolee in General

12 on Friday
Reply by Patsy
Jess

SCA3

Please share your story with the community...I am new here, I am not the patient, i am the husband of the patient, mentioned above her name…

Started by Jess in General

30 on Thursday
Reply by Marie Turner
Kati

Q10???

I'm sure I've seen Q10 mentioned on here in relation to ataxia.  I was just wondering how exactly it helps with ataxia and what symptoms it…

Started by Kati in General

1 on Wednesday
Reply by Patsy
Alan Thomas

Wicklow duo aiming to secure Irish team spot

Wicklow duo aiming to secure Irish team spot http://www.wicklowpeople.ie/sport/wicklow-duo-aiming-to-secure-irish-team-spot-3013814.html

Started by Alan Thomas in General

0 on Wednesday
MissCake2

Looking for others with gluten ataxia or problems with vestibular balance and vertigo.

I am new to this site, and just found it today.  I am also newly diagnosed with gluten ataxia.  My biggest issue has been learning to live…

Started by MissCake2 in General

53 on Wednesday
Reply by Melissa

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